Thank you to everyone who joined us at the Butterfly Run on Sunday! Whether you ran, walked or wheeled your way around the course, or were there to cheer someone on, we were delighted to see you there!...
We were delighted to be joined by Peter Marinkovich and Suma Krishnan last week to talk about B-VEC (Vyjuvek), a gene therapy gel approved by the FDA for the treatment of wounds in dystrophic EB....
In our recent Research the Cure webinar, we were delighted to have Prof John McGrath and Prof Jakub Tolar join us to discuss being prepared for EB treatments, today and in the future....
For the first time since the pandemic, we were able to host a Research Update Evening on 28 March 2023. We were delighted to have Prof John McGrath, Dr Joanna Jacków, and Prof Alain Hovnanian speak at the event....
In the lead-up to Rare Disease Day, we held the first of our new series of research webinars – Research the Cure - with Prof John McGrath....
After a break due to the pandemic, it was wonderful to be back together at the Queen Elizabeth Olympic Park in London – catching up with old friends and meeting some new faces too!...
Wow! What a fantastic day we had on Sunday. The sun shone and so did the smiles of our runners and supporters. The results are in...
We are absolutely thrilled that our Silver Butterfly Dinner at RIBA raised £352,000 for EB research. You can have a look at some of the photos below...
Thank you to everyone who came to or supported the Walk On The Wild Side event at London Zoo last week. It was wonderful to get together with so many of you and to share updates and reflections...
We had a fabulous day yesterday for our Butterfly Run 2019. Thank you everyone for coming and giving your all!...