Your child’s school could fundraise for Cure EB. It is a fantastic way to raise awareness. You could host a non-uniform day, bake sale, summer fete, talent show, quiz… well, we suspect the children will be better at ideas than us!
You could run an EBpop session in the summer, or perhaps read Binky’s Time to Fly to the class.
In 2016 we were the charity of the year for the Royal Masonic School for Girls. They raised an incredible £9705.92 over the course of the school year!