Our annual Family Day is a chance for EB families to connect with each other, while catching up on the latest EB research news. Family Day is a fun day for all EB families. The children are entertained with games and crafts, while the adults can hear from EB experts. There is also plenty of time for tea and cake so that families can catch up with old friends and make some new ones!
You may also be interested in our Family Forum or our Butterfly Runs.
If you’d like to organise a fundraising event in your community, check out our Organise an event page.
Check back soon for new events.
After a break due to the pandemic, it was wonderful to be back together at the Queen Elizabeth Olympic Park in London – catching up with old friends and meeting some new faces too!...
29 September, 2022
We had a fabulous day yesterday for our Butterfly Run 2019. Thank you everyone for coming and giving your all!...
23 September, 2019
Sun and fun at the Cure EB Butterfly Run and Family Day! Such a beautiful course at Queen Elizabeth Olympic Park....
30 September, 2018
Thank you and well done to all the families that took part in Parallel London's 100m, 1k, 5k and 10k races this weekend....
03 September, 2017