After a break due to the pandemic, it was wonderful to be back together at the Queen Elizabeth Olympic Park in London – catching up with old friends and meeting some new faces too!...29 September, 2022
Updates and events for the EB Community
Our annual Family Day is a chance for EB families to connect with each other, while catching up on the latest EB research news. Family Day is a fun day for all EB families. The children are entertained with games and crafts, while the adults can hear from EB experts. There is also plenty of time for tea and cake so that families can catch up with old friends and make some new ones!
If you’d like to organise a fundraising event in your community, check out our Organise an event page.