Community Events

Child facing away from camera wearing large balloon butterfly wings

Updates and events for the EB Community

Our annual Family Day is a chance for EB families to connect with each other, while catching up on the latest EB research news. Family Day is a fun day for all EB families. The children are entertained with games and crafts, while the adults can hear from EB experts. There is also plenty of time for tea and cake so that families can catch up with old friends and make some new ones!

You may also be interested in our Family Forum or our Butterfly Runs.

If you’d like to organise a fundraising event in your community, check out our Organise an event page.

Upcoming Events

Check back soon for new events.

Previous Community Events