We want every ‘butterfly child’ to be free of pain, every EB adult to have relief from the daily suffering of their fragile skin. We run various campaigns and appeals to raise awareness of this terrible disease, and to raise funds to help find the cure.
Campaigns
Coffee to Cure EB
For the cost of a takeaway cup of coffee or tea, you can help fund research to cure EB. Text CUREEB to 70560 to give £3.
Radio 4 Appeal
Listen again to our appeal broadcast on BBC Radio 4 in May 2023, and find out about our mission to fix the genes which cause EB.
Tongue Twisters
We challenged celebrities, researchers and the public to get their tongues around ‘Recessive Dystrophic Epidermolysis Bullosa’!
EB Pop
Stay cool in the summer and raise money for Cure EB. Have lots of fun by playing EBpop to make the blisters stop!