As a charity set up by a family directly affected by Epidermolysis Bullosa, Cure EB understand the desperate need for, and the potentially life-changing impact of, research into this devastating condition.
The Family Forum has been created in order to keep those impacted by EB updated on current and potential EB research, as well as how to support our search for a cure. It is free to join.
If you or a family member have EB, sign up to the Family Forum to hear about:
How else can I get involved?
You don’t have to join the Family Forum to be a part of curing EB!
You could:
Your support will help us continue to fund research into effective treatments and ultimately a cure for EB.
EB Family Day 2026Our EB Family Day is back on Sunday 4th October – if you or your family member has EB, we’d love you to join us at this free event. Find out more & register now.
Visit our calendar to see all of our upcoming events.