Cure EB Family Forum

Black and white faces of EB children overlaid with 'Epidermolysis Bullosa. Hard to say. Hell to live with.'

As a charity set up by a family directly affected by Epidermolysis Bullosa, Cure EB understand the desperate need for, and the potentially life-changing impact of, research into this devastating condition.

The Family Forum has been created in order to keep those impacted by EB updated on current and potential EB research, as well as how to support our search for a cure.

If you or a family member have EB, join the Family Forum to receive:

  • Regular email updates on EB research and Cure EB news.
  • Annual Cure EB newsletter.
  • Exclusive access to research webinars.
  • Online get together for people living with EB and their families.
  • Entrance to Cure EB Family Day.
  • Information on Cure EB fundraising events.

How else can I get involved?

You don’t have to join the Family Forum to be a part of curing EB!

You could:

Your support will help us continue to fund research into effective treatments and ultimately a cure for EB.