OUR RESEARCH
Epidermolysis Bullosa is an incurable, progressive, debilitating and very painful genetic skin condition which causes internal and external blisters at the slightest friction. In its most serious form, it causes wounds that are like having very severe burns, eventually leading to skin cancer. Cure EB exist to find and fund research into treatments and, ultimately, a cure for this devastating disease.
First large-scale stem cell clinical trial, funded by NIHR & Cure EB, has started.
Hard to say. Hell to live with. Support our mission to fix the genes which cause EB.
Donate via the Big Give until 5 December and double your impact on gene-editing
Funds Raised
Projects Funded
Treatment In Delivery
Through targeted funding and collaboration, we strive for treatments that provide symptomatic relief, quality of life change, and ultimately, a cure for all types of EB.
Thank you to everyone who joined us for our wonderful Butterfly Brunch including our fantastic speak...
29 November, 2023 No comment
Data on the use of rigosertib in patients with RDEB-associated squamous cell carcinoma was presented...
16 October, 2023 No comment
It was wonderful to connect with old friends and lovely to meet some new faces at our annual Family ...
28 September, 2023 No comment
