Epidermolysis Bullosa is an incurable, progressive, debilitating and very painful genetic skin condition which causes internal and external blisters at the slightest friction. In its most serious form, it causes wounds that are like having very severe burns, eventually leading to skin cancer. Cure EB exist to find and fund research into treatments and, ultimately, a cure for this devastating disease.
Research the Cure Webinar
Prof Jakub Tolar joins us on 11 Dec to talk about Immune & Cell Therapy for RDEB SCC
Mission EB
results are in!
The largest clinical trial of its kind reports positive results for those with RDEB.
Living with EB
Our Research and Impact
£17m
Funds Raised
40
Projects Funded
1st
Treatment In Delivery
Through targeted funding and collaboration, we strive for treatments that provide symptomatic relief, quality of life change, and ultimately, a cure for all types of EB.
Chemoprevention of RDEB SCC
Current Projects, EB Cancer Therapy, Whole Body Treatment
Replay
Current Projects, Gene Therapy, Quality of Life ChangeLatest News
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What to know this EB Awareness Week
EB Awareness Week takes place every year between 25th-31st October. It's an international campaign t...
28 October, 2025 No comment -
