OUR RESEARCH
Epidermolysis Bullosa is an incurable, progressive, debilitating and very painful genetic skin condition which causes internal and external blisters at the slightest friction. In its most serious form, it causes wounds that are like having very severe burns, eventually leading to skin cancer. Cure EB exist to find and fund research into treatments and, ultimately, a cure for this devastating disease.
Dr Joanna Jackow joins us on 18 November to talk about her gene editing research.
Hard to say. Hell to live with. Support our mission to fix the genes which cause EB.
First large-scale stem cell clinical trial, funded by NIHR & Cure EB, has started.
Funds Raised
Projects Funded
Treatment In Delivery
Through targeted funding and collaboration, we strive for treatments that provide symptomatic relief, quality of life change, and ultimately, a cure for all types of EB.
We are still buzzing from a fantastic Sunday afternoon spent with other EB families, EB researchers ...
02 October, 2024 No comment
Wow! What a fabulous day at the Queen Elizabeth Olympic Park yesterday for our 2024 Butterfly Run!...
30 September, 2024 No comment
We were delighted to be joined by Dr Ciro Chiappini from King's College London to hear about his nan...
06 August, 2024 No comment
