Raising funds for Epidermolysis Bullosa research.

Epidermolysis Bullosa is an incurable, progressive, debilitating and very painful genetic skin condition which causes internal and external blisters at the slightest friction. In its most serious form, it causes wounds that are like having very severe burns, eventually leading to skin cancer. Cure EB exist to find and fund research into treatments and, ultimately, a cure for this devastating disease.

Mission EB
is underway!

First large-scale stem cell clinical trial, funded by NIHR & Cure EB, has started.

Butterfly Run is open for bookings!

Book your space for our 2023 Butterfly Run, 24 September at London’s Olympic Park

Exclusive Hardback Book

Get your hands on a beautiful, exclusive hard-back edition of Binky’s Time To Fly!

Living with EB

Our Research and Impact


Funds Raised


Projects Funded


Treatment In Delivery

Through targeted funding and collaboration, we strive for treatments that provide symptomatic relief, quality of life change, and ultimately, a cure for all types of EB. 

Latest News

Fight for a life free of pain. To end EB. Research the cure.