EB Priority Setting Partnership
Cure EB was happy to partner on an EB research priority setting project with the James Lind Alliance...
17 June, 2025 No commentEpidermolysis Bullosa is an incurable, progressive, debilitating and very painful genetic skin condition which causes internal and external blisters at the slightest friction. In its most serious form, it causes wounds that are like having very severe burns, eventually leading to skin cancer. Cure EB exist to find and fund research into treatments and, ultimately, a cure for this devastating disease.
Large-scale stem cell clinical trial, funded by NIHR & Cure EB, close to completion.
Get your hands on a beautiful, exclusive edition of Binky’s Time To Fly!
Funds Raised
Projects Funded
Treatment In Delivery
Through targeted funding and collaboration, we strive for treatments that provide symptomatic relief, quality of life change, and ultimately, a cure for all types of EB.
Cure EB was happy to partner on an EB research priority setting project with the James Lind Alliance...
17 June, 2025 No commentIt's Rare Disease Day! Plus Krystal's Vyjuvek gets a positive opinion from the CHMP!...
28 February, 2025 No comment