Epidermolysis Bullosa is an incurable, progressive, debilitating and very painful genetic skin condition which causes internal and external blisters at the slightest friction. In its most serious form, it causes wounds that are like having very severe burns, eventually leading to skin cancer. Cure EB exist to find and fund research into treatments and, ultimately, a cure for this devastating disease.
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First large-scale stem cell clinical trial, funded by NIHR & Cure EB, has started.
Funds Raised
Projects Funded
Treatment In Delivery
Through targeted funding and collaboration, we strive for treatments that provide symptomatic relief, quality of life change, and ultimately, a cure for all types of EB.
We are still buzzing from a fantastic Sunday afternoon spent with other EB families, EB researchers ...
02 October, 2024 No commentWow! What a fabulous day at the Queen Elizabeth Olympic Park yesterday for our 2024 Butterfly Run!...
30 September, 2024 No comment