Epidermolysis Bullosa is an incurable, progressive, debilitating and very painful genetic skin condition which causes internal and external blisters at the slightest friction. In its most serious form, it causes wounds that are like having very severe burns, eventually leading to skin cancer. Cure EB exist to find and fund research into treatments and, ultimately, a cure for this devastating disease.

Prof Jakub Tolar joins us on 20 Nov to talk about Immune & Cell Therapy for RDEB SCC

The largest clinical trial of its kind reports positive results for those with RDEB.

Get your hands on a beautiful, exclusive edition of Binky’s Time To Fly!
Funds Raised

Projects Funded
Treatment In Delivery
Through targeted funding and collaboration, we strive for treatments that provide symptomatic relief, quality of life change, and ultimately, a cure for all types of EB.
What a fabulous day at the Queen Elizabeth Olympic Park for our Butterfly Run 2025!...
06 October, 2025 No comment