Raising funds for Epidermolysis Bullosa research.

Epidermolysis Bullosa is an incurable, progressive, debilitating and very painful genetic skin condition which causes internal and external blisters at the slightest friction. In its most serious form, it causes wounds that are like having very severe burns, eventually leading to skin cancer. Cure EB exist to find and fund research into treatments and, ultimately, a cure for this devastating disease.

Research Webinar

Dr Joanna Jackow joins us on 18 November to talk about her gene editing research.

Radio 4 Appeal

Hard to say. Hell to live with. Support our mission to fix the genes which cause EB.

Mission EB
is underway!

First large-scale stem cell clinical trial, funded by NIHR & Cure EB, has started.

Living with EB

Our Research and Impact

£12m

Funds Raised

32

Projects Funded

1st

Treatment In Delivery

Through targeted funding and collaboration, we strive for treatments that provide symptomatic relief, quality of life change, and ultimately, a cure for all types of EB. 

Latest News

Fight for a life free of pain. To end EB. Research the cure.