Rare Disease Day 2025
It's Rare Disease Day! Plus Krystal's Vyjuvek gets a positive opinion from the CHMP!...
28 February, 2025 No commentEpidermolysis Bullosa is an incurable, progressive, debilitating and very painful genetic skin condition which causes internal and external blisters at the slightest friction. In its most serious form, it causes wounds that are like having very severe burns, eventually leading to skin cancer. Cure EB exist to find and fund research into treatments and, ultimately, a cure for this devastating disease.
First large-scale stem cell clinical trial, funded by NIHR & Cure EB, has started.
Raise vital funds for EB by getting together for food, friendship and fun!
Funds Raised
Projects Funded
Treatment In Delivery
Through targeted funding and collaboration, we strive for treatments that provide symptomatic relief, quality of life change, and ultimately, a cure for all types of EB.
It's Rare Disease Day! Plus Krystal's Vyjuvek gets a positive opinion from the CHMP!...
28 February, 2025 No commentMishal Husein and Hadley Freeman kept us captivated at our Butterfly Speaker Lunch, which marked the...
04 December, 2024 No commentNotifications