Jul 18 2023 Focus on B-VEC – Family Forum July 2023
We were delighted to be joined by Peter Marinkovich (Associate Professor of Dermatology at Stanford University and primary investigator of the GEM-3 trial) and Suma Krishnan (Founder, and President, Research and Development at Krystal Biotech) last week to talk about B-VEC (Vyjuvek), a gene therapy gel approved by the FDA for the treatment of wounds in dystrophic EB.
Peter began the meeting by talking about the clinical trial results and the path to this landmark FDA approval in Dystrophic EB, before a Q&A session with our Family Forum members.
It was so good to see there is light at the end of the painful tunnel. I had no idea such treatments existed.
Thank you for arranging the meeting. It is such a leap forward and offers such hope.
The meeting was hosted by Cure EB founder, Sharmila Collins, and Community Liaison Officer, Kate Gee. If you, or a family member have EB, our Family Forum is free to join and comes with a host of benefits.