Events

06 August, 2024

Research the Cure webinar June 2024 – Nanoneedles in EB

We were delighted to be joined by Dr Ciro Chiappini from King's College London to hear about his nanoneedle research at our Research the Cure webinar last month. ...

23 July, 2024

Cure EB Family Forum Hand Hackathon

Sharmila and Kate were joined by Natasha to host a 'Hand Hackathon' at our July Family Forum. ...

28 March, 2024

Research Evening at the Royal Institution

We were delighted to welcome donors, researchers, clinicians and EB families to our Research Evening at the Royal Institution in London...

06 December, 2023

All I Want for Christmas is a Cure – Family Forum December 2023

Sharmila and Kate enjoyed getting together with other EB families yesterday at our December Family Forum online event. They discussed our current research projects and the EB research landscape in general....

30 November, 2023

Lab background overlaid with the words "Research the Cure Research Webinar. EB-associated squamous cell carcinoma. 9th November 2023." and photo of Prof Andrew South.

Research the Cure webinar – EB-associated squamous cell carcinoma

Prof Andrew South has been researching EB-associated cancer for more than a decade and we were grateful he could join us....

29 November, 2023

Butterfly Brunch London

Thank you to everyone who joined us for our wonderful Butterfly Brunch including our fantastic speakers, Hadley Freeman and Amelia Gentleman....

28 September, 2023

Cure EB Family Day 2023

It was wonderful to connect with old friends and lovely to meet some new faces at our annual Family Day on Sunday 24th September....

25 September, 2023

Butterfly Run 2023 – Fun Times & Run Times!

Thank you to everyone who joined us at the Butterfly Run on Sunday! Whether you ran, walked or wheeled your way around the course, or were there to cheer someone on, we were delighted to see you there!...

18 July, 2023

Focus on B-VEC – Family Forum July 2023

We were delighted to be joined by Peter Marinkovich and Suma Krishnan last week to talk about B-VEC (Vyjuvek), a gene therapy gel approved by the FDA for the treatment of wounds in dystrophic EB....

25 May, 2023

Research the Cure webinar – Be Prepared

In our recent Research the Cure webinar, we were delighted to have Prof John McGrath and Prof Jakub Tolar join us to discuss being prepared for EB treatments, today and in the future....

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Events

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