
Jul 23 2024 Cure EB Family Forum Hand Hackathon
Sharmila (Cure EB Founder) and Kate (Cure EB’s Family Liaison Officer) were joined by Natasha to host a ‘Hand Hackathon’ at our July Family Forum online event.
The three shared how they dressed their children’s (aged from 1 to 22 years!) hands to try to minimise scarring, contraction and damage. It was an interactive evening, an opportunity for EB parents to connect and share how they manage hands and what dressings and creams/lotions have worked for them and their child.
As part of the event, Sharmila and Natasha shared videos of how they each dress hands – you can view these videos below.
We can’t wait to host more Family Forum online events. The Family Forum is created by EB families for EB families, so if you have a suggestion for a topic that you would like to see us cover at a future event, please get in touch!
Our next family event is our Family Day – held at London’s Olympic Park on 29th September. It’s free to attend and you can register your place here. Or perhaps, you would like to join us at our fun, friendly and inclusive Butterfly Run on the same date.