Research Events

Sharmila standing in front of lecturn with image of sohana projected behind

Sharing our research with supporters

Our research events connect our supporters to the research work we fund. Held in some fascinating spaces such as the House of Lords, Bond Museum and Skyloft, these exclusive in person events are a fun opportunity to connect with Cure EB and to discover more about the latest EB research.

Our Research the Cure webinars focus on different areas of EB research.

Upcoming Events

Check back soon for upcoming events

Previous Research Events

Research the Cure – EBSkinEdit

Prof Fernando Larcher joined Sharmila to talk about EBSkinEdit, a translational research project towards a genome editing-based treatment for EB....
15 June, 2026
Research Update at the Royal Institution

We were delighted to welcome donors, researchers, clinicians, partners and EB families to our Research the Cure Update Evening in London earlier this month....
31 March, 2026
Research the Cure – Immune therapy for RDEB SCC

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15 December, 2025
Research the Cure webinar September 2025 – Dr Ganna Bilousova

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01 October, 2025
Research the Cure webinar April 2025 – Mission EB

Dr Anna Martinez was lead investigator on Mission EB - the first large-scale stem cell clinical trial for children with EB....
30 April, 2025
Research the Cure Update Evening

This month we held our annual Research the Cure Update Evening with patron Damian Lewis and a fantastic group of speakers and panelists....
31 March, 2025
Research the Cure November 2024 – Gene Editing in EB

Thanks to Dr Joanna Jacków who joined us last week to talk about gene editing in EB....
25 November, 2024
Research the Cure webinar September 2024 – eMSCs in RDEB

Prof Tamai joined us to outline his research into gene-modified blister fluid-derived mesenchymal stromal cells (MSCs) to treat RDEB....
19 September, 2024
Research the Cure webinar June 2024 – Nanoneedles in EB

We were delighted to be joined by Dr Ciro Chiappini from King's College London to hear about his nanoneedle research at our Research the Cure webinar last month. ...
01 July, 2024
Research Evening at the Royal Institution

We were delighted to welcome donors, researchers, clinicians and EB families to our Research Evening at the Royal Institution in London...
28 March, 2024
Research the Cure webinar – EB-associated squamous cell carcinoma

Prof Andrew South has been researching EB-associated cancer for more than a decade and we were grateful he could join us....
30 November, 2023
Research the Cure webinar – Be Prepared

In our recent Research the Cure webinar, we were delighted to have Prof John McGrath and Prof Jakub Tolar join us to discuss being prepared for EB treatments, today and in the future....
25 May, 2023

Research Events

Sharing our research with supporters

Upcoming Events

100% of donations go to fund research