Research Events

Sharmila standing in front of lecturn with image of sohana projected behind

Sharing our research with supporters

Our research events connect our supporters to the research work we fund. Held in some fascinating spaces such as the House of Lords, Bond Museum and Skyloft, these exclusive in person events are a fun opportunity to connect with Cure EB and to discover more about the latest EB research.

 

New for 2023, our Research the Cure webinars focus on different areas of EB research.

Upcoming Events

Research the Cure – Research Webinar

Check back soon for upcoming webinars.

Previous Research Events
  • It was wonderful to connect with old friends and lovely to meet some new faces at our annual Family Day on Sunday 24th September....

  • In our recent Research the Cure webinar, we were delighted to have Prof John McGrath and Prof Jakub Tolar join us to discuss being prepared for EB treatments, today and in the future....

  • For the first time since the pandemic, we were able to host a Research Update Evening on 28 March 2023. We were delighted to have Prof John McGrath, Dr Joanna Jacków, and Prof Alain Hovnanian speak at the event....

  • In the lead-up to Rare Disease Day, we held the first of our new series of research webinars – Research the Cure - with Prof John McGrath....