Gala Events

vase of purple and blue flowers on a table dressed for a galal dinner

Join us for one of our fundraising gala events!

We’ve had some magnificent fundraising events over the years, and several of them appear quite regularly on our calendar. From dinners in delightful venues, to recitals and concerts, we love getting creative while raising the much-needed funds to bring the fullest life possible to those struggling with EB.

Our Silver Butterfly Dinners are our flagship fundraising event, held every two years. A night of champagne, dinner, entertainment and auctions in beautiful surroundings.

Upcoming Events

Check back soon for new events.

Previous Gala Events
  • We are absolutely thrilled that our Silver Butterfly Dinner at RIBA raised £352,000 for EB research. You can have a look at some of the photos below...

  • Thank you to everyone who came to or supported the Walk On The Wild Side event at London Zoo last week. It was wonderful to get together with so many of you and to share updates and reflections......

  • Our Silver Butterfly Dinner raised over £310,000 this year, held once again at the beautiful Royal Institute of Architects. Another fun night was had by all....

  • Thank you to everyone that joined us for our 2017 Silver Butterfly Dinner, again hosted in the fantastic Florence Hall at......

  • Thank you to the London International Orchestra, whose 30th Anniversary concert was given in support of Sohana Research Fund this year....

  • The Silver Butterfly Dinner hosted and organised by the Sohana Research Fund at RIBA on 14 May 2015 raised over £522,000 for RDEB research. 100% of proceeds from the night go to research....