Whether you want to set a running personal best while raising funds for Cure EB, enjoy a fun day out for all the family, or dress up for a gala event, we have an event to suit you. We would love you to get involved!

Seated panel of three women laughing

Butterfly Brunches

Eat, have fun, and help cure EB!
vase of purple and blue flowers on a table dressed for a galal dinner

Gala Events

From dinners, to recitals and concerts, our fantastic gala events raise much-needed funds while having great fun!
Group of adults and children standing on and around a winners podium cheering

Sporting Challenges

From our own family-friendly Butterfly Run, to marathons and RideLondons, there are plenty of ways to take on a physical activity for Cure EB.
Child facing away from camera wearing large balloon butterfly wings

Community Events

A chance for EB families to connect and catch up on the latest EB research.
Teenager laughing with bubbles floating around them

Social Media Campaigns

Curious about EBpop, or the tongue twister challenge?
Sharmila standing in front of lecturn with image of sohana projected behind

Research Events

Our in-person and online research events connect our supporters to the research work we fund.