Events

25 November, 2024

Research the Cure November 2024 – Gene Editing in EB

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column width="1/2"][vc_column_text css=""]Thanks to Dr Joanna Jacków who joined us last week to talk about gene editing in EB. Click on the video to watch an excerpt from the webinar where Joanna explains CRISPR gene editing.[/vc_column_text][vc_column_text css=""]You can read...

02 October, 2024

EB Family Day Fun

We are still buzzing from a fantastic Sunday afternoon spent with other EB families, EB researchers & clinicians at the Queen Elizabeth Olympic Park in London....

30 September, 2024

Butterfly Runners Fly High!

Wow! What a fabulous day at the Queen Elizabeth Olympic Park yesterday for our 2024 Butterfly Run!...

19 September, 2024

Research the Cure webinar September 2024 – eMSCs in RDEB

Prof Tamai joined us to outline his research into gene-modified blister fluid-derived mesenchymal stromal cells (MSCs) to treat RDEB....

23 July, 2024

Cure EB Family Forum Hand Hackathon

Sharmila and Kate were joined by Natasha to host a 'Hand Hackathon' at our July Family Forum. ...

01 July, 2024

Research the Cure webinar June 2024 – Nanoneedles in EB

We were delighted to be joined by Dr Ciro Chiappini from King's College London to hear about his nanoneedle research at our Research the Cure webinar last month. ...

28 March, 2024

Research Evening at the Royal Institution

We were delighted to welcome donors, researchers, clinicians and EB families to our Research Evening at the Royal Institution in London...

06 December, 2023

All I Want for Christmas is a Cure – Family Forum December 2023

Sharmila and Kate enjoyed getting together with other EB families yesterday at our December Family Forum online event. They discussed our current research projects and the EB research landscape in general....

30 November, 2023

Research the Cure webinar – EB-associated squamous cell carcinoma

Prof Andrew South has been researching EB-associated cancer for more than a decade and we were grateful he could join us....

29 November, 2023

Butterfly Brunch London

Thank you to everyone who joined us for our wonderful Butterfly Brunch including our fantastic speakers, Hadley Freeman and Amelia Gentleman....