EB Family Day Fun
We are still buzzing from a fantastic Sunday afternoon spent with other EB families, EB researchers & clinicians at the Queen Elizabeth Olympic Park in London....
02 October, 2024
Events
30 September, 2024
Butterfly Runners Fly High!
Wow! What a fabulous day at the Queen Elizabeth Olympic Park yesterday for our 2024 Butterfly Run!...
19 September, 2024
Research the Cure webinar September 2024 – eMSCs in RDEB
Prof Tamai joined us to outline his research into gene-modified blister fluid-derived mesenchymal stromal cells (MSCs) to treat RDEB....
23 July, 2024
Cure EB Family Forum Hand Hackathon
Sharmila and Kate were joined by Natasha to host a 'Hand Hackathon' at our July Family Forum. ...
01 July, 2024
Research the Cure webinar June 2024 – Nanoneedles in EB
We were delighted to be joined by Dr Ciro Chiappini from King's College London to hear about his nanoneedle research at our Research the Cure webinar last month. ...
28 March, 2024
Research Evening at the Royal Institution
We were delighted to welcome donors, researchers, clinicians and EB families to our Research Evening at the Royal Institution in London...
06 December, 2023
All I Want for Christmas is a Cure – Family Forum December 2023
Sharmila and Kate enjoyed getting together with other EB families yesterday at our December Family Forum online event. They discussed our current research projects and the EB research landscape in general....
30 November, 2023
Research the Cure webinar – EB-associated squamous cell carcinoma
Prof Andrew South has been researching EB-associated cancer for more than a decade and we were grateful he could join us....
29 November, 2023
Butterfly Brunch London
Thank you to everyone who joined us for our wonderful Butterfly Brunch including our fantastic speakers, Hadley Freeman and Amelia Gentleman....
28 September, 2023
Cure EB Family Day 2023
It was wonderful to connect with old friends and lovely to meet some new faces at our annual Family Day on Sunday 24th September....