Research the Cure Update Evening
This month we held our annual Research the Cure Update Evening with patron Damian Lewis and a fantastic group of speakers and panelists....
31 March, 2025
Events
17 January, 2025
Cure EB Family Forum – losartan in RDEB
[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]It was wonderful to have Prof Dimitra Kiritsi, Professor of Dermatology at the Aristotle University of Thessaloniki at our Family Forum online last month. As part of her interesting and informative talk, Dimitra outlined the reasons researchers decided...
04 December, 2024
Butterfly Speaker Lunch launches Big Give 2024
Mishal Husein and Hadley Freeman kept us captivated at our Butterfly Speaker Lunch, which marked the start of our Big Give week...
25 November, 2024
Research the Cure November 2024 – Gene Editing in EB
Thanks to Dr Joanna Jacków who joined us last week to talk about gene editing in EB....
02 October, 2024
EB Family Day Fun
We are still buzzing from a fantastic Sunday afternoon spent with other EB families, EB researchers & clinicians at the Queen Elizabeth Olympic Park in London....
30 September, 2024
Butterfly Runners Fly High!
Wow! What a fabulous day at the Queen Elizabeth Olympic Park yesterday for our 2024 Butterfly Run!...
19 September, 2024
Research the Cure webinar September 2024 – eMSCs in RDEB
Prof Tamai joined us to outline his research into gene-modified blister fluid-derived mesenchymal stromal cells (MSCs) to treat RDEB....
23 July, 2024
Cure EB Family Forum Hand Hackathon
Sharmila and Kate were joined by Natasha to host a 'Hand Hackathon' at our July Family Forum. ...
01 July, 2024
Research the Cure webinar June 2024 – Nanoneedles in EB
We were delighted to be joined by Dr Ciro Chiappini from King's College London to hear about his nanoneedle research at our Research the Cure webinar last month. ...
28 March, 2024
Research Evening at the Royal Institution
We were delighted to welcome donors, researchers, clinicians and EB families to our Research Evening at the Royal Institution in London...