Our Impact

Medical research to find a cure for EB is the only focus of our energies and of your donations. Indeed, 100% of every pound donated goes directly to fund our projects, as our costs are fully underwritten. This means that your donations can have an even greater impact.

Recent highlights include:

  • Cure EB (formerly Sohana Research Fund) has raised over £10 million in 10 years, funding 24 projects including four clinical trials, innovative projects aiming to correct the genetic faults that cause the problem and bring an interim treatment to the bedside.
  • In 2017, together with two other US-based medical research charities, we funded the EB iPS Cell Consortium, which includes researchers from leading universities in the US. The results of its early work were so promising that the Colorado group was also successful in obtaining an additional grant for this work in 2018 and a further grant in 2019.
  • In 2013 we funded EBSTEM, the results of which were published in the Journal of Investigative Dermatology. ADSTEM followed, with results published in the Journal of American Dermatology. These clinical trials led to Mission EB, the largest stem cell trial in the country for children with RDEB and Great Ormond Steet Hospital and Birmingham Children’s Hospital.

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