
Sep 28 2023 Cure EB Family Day 2023
It was wonderful to connect with old friends and lovely to meet some new faces at our annual Family Day on Sunday 24th September at the Queen Elizabeth Olympic Park in London.
Thank you to our panel of speakers:
- Prof. John McGrath, King’s College London
- Dr Ciro Chiappini, King’s College London
- Dr Matthias Titeux, INSERM
- Dr Joanna Jackow, King’s College London
- Dr Emanuel Rognoni, Queen Mary University of London
We love our Family Day as it’s a wonderful opportunity to hear about the latest EB research while the children are entertained, and to spend some time with other EB families.
Thank you so much if you joined us – we hope you enjoyed the day as much as we did and hope to see you again soon!
For more community events, you may wish to join our Family Forum, designed for people with EB and their families.
Were you there?
We’d love to see your photos of the day too – please tag us if you’re sharing online.
Our Family Day was funded in part by a grant from Amryt Pharma, as well as sponsorship from:


