There are several ways to find support if you or a family member has EB:

  • Join our Family Forum to connect with other EB families and learn more about EB research.
  • We are a fully-research focussed charity.
    • If you are in in the UK, and need help with support grants and information, your nearest EB support organisation is DEBRA.
    • For EB support around the world, there is a network of DEBRA organisations that can be located via the Debra International website
    • EB Without Borders provides assistance to people living with EB in countries where no DEBRA group exists.
  • The first ever EB patient reported registry has been launched at, and aims to help advance research
Gabrielius and toy monkey