We are an ambitious organisation with an ambitious mission: to cure EB. To achieve this, our current fundraising priorities are funding these high-impact projects:
- Gene therapy and gene editing projects for RDEB
- MSC treatment for children with RDEB
- Gene editing limbal stem cells for RDEB
- Generating gene modified skin grafts and funding a clinical trial to test this treatment
- RNA projects
- Research projects into treatment options for RDEB squamous cell carcinoma, a malignant skin cancer which often affects patients with a severe form of EB
- Gene modification and gene editing projects for a type of EB called Junctional EB
- Dedicated facilities for gene editing, gene modification and EB gene and cell therapy treatment suite
- Lectureships in Dermatology, PhD studentships and Clinical Research fellowships
For further information, please see our Research pages.
