Spread the word!
Social media challenges can be a really effective way to spread the word about the realities of EB, as well as raise funds in a fun, sharable way.
EBpop is a fun challenge (best done in the summer when it’s warm!) sharing videos of popping water balloons, bubbles or sponge bombs. Whether as a thrower or a willing target of another’s keen throwing, this is a great communal and fundraising activity.
Sohana’s Tongue Twister Challenge took place in 2014, and challenged celebrities, researchers and the public to get their tongues around ‘Recessive Dystrophic Epidermolysis Bullosa’ and share their tongue twisters on social media, raising funds through text giving. You can still take on the challenge!