Cure EB Family Forum Foot Hackathon

It was great to get together earlier this month with some of our Family Forum members to discuss how we dress feet – to protect and prevent damage and scarring, and to maintain mobility.

Thanks to Sharmila, Kate, Natasha and Erin who all shared videos of how they dress their child’s (ranging in age from almost 2 to 22!) feet – click on the images below to view.

Sohana (22)

Poppy (13)

Abe (2)

Albi (1)

Please note that the videos and the Foot Hackathon event were not medical advice, but an opportunity for EB parents to come together and share knowledge on what has and hasn’t worked for them.

Join in

If you or a family member/loved one have EB and you’d like to take part in our next event, join our Family Forum. It’s completely free and these events are online so you can join from wherever you are!