[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]Three mums, one mountain, one mission - to cure EB! On 20th June, three EB mums - Kate, Sharmila and Clara - will set out to climb Mount Olympus in Greece over the course of two days, with...
Earlier this month, members of our Family Form came together online to discuss how they dress feet...
Sharmila and Kate were joined by Natasha to host a 'Hand Hackathon' at our July Family Forum. ...
Sharmila and Kate enjoyed getting together with other EB families yesterday at our December Family Forum online event. They discussed our current research projects and the EB research landscape in general....
Thank you to everyone who joined us at the Butterfly Run on Sunday! Whether you ran, walked or wheeled your way around the course, or were there to cheer someone on, we were delighted to see you there!...
We were delighted to be joined by Peter Marinkovich and Suma Krishnan last week to talk about B-VEC (Vyjuvek), a gene therapy gel approved by the FDA for the treatment of wounds in dystrophic EB....
After a break due to the pandemic, it was wonderful to be back together at the Queen Elizabeth Olympic Park in London – catching up with old friends and meeting some new faces too!...
Thank you and well done to all the families that took part in Parallel London's 100m, 1k, 5k and 10k races this weekend....