Community Events

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]It was wonderful to have Prof Dimitra Kiritsi, Professor of Dermatology at the Aristotle University of Thessaloniki at our Family Forum online last month. As part of her interesting and informative talk, Dimitra outlined the reasons researchers decided...

We are still buzzing from a fantastic Sunday afternoon spent with other EB families, EB researchers & clinicians at the Queen Elizabeth Olympic Park in London....

Wow! What a fabulous day at the Queen Elizabeth Olympic Park yesterday for our 2024 Butterfly Run!...

It was wonderful to connect with old friends and lovely to meet some new faces at our annual Family Day on Sunday 24th September....

We were delighted to be joined by Peter Marinkovich and Suma Krishnan last week to talk about B-VEC (Vyjuvek), a gene therapy gel approved by the FDA for the treatment of wounds in dystrophic EB....