EB Family Day 2026
Thank you to everyone who joined us at our EB Family Day on Sunday 4th October!...
20 October, 2026
Community Events
07 October, 2025
Cure EB Family Day 2025
[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]Cure EB Family Day is one of the highlights of our year, and this year's event was no exception! Held once again at Timber Lodge at the Queen Elizabeth Olympic Park in London, EB families came together with...
26 June, 2025
Cure EB Family Forum Foot Hackathon
Earlier this month, members of our Family Form came together online to discuss how they dress feet...
17 January, 2025
Cure EB Family Forum – losartan in RDEB
[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]It was wonderful to have Prof Dimitra Kiritsi, Professor of Dermatology at the Aristotle University of Thessaloniki at our Family Forum online last month. As part of her interesting and informative talk, Dimitra outlined the reasons researchers decided...
02 October, 2024
EB Family Day Fun
We are still buzzing from a fantastic Sunday afternoon spent with other EB families, EB researchers & clinicians at the Queen Elizabeth Olympic Park in London....
30 September, 2024
Butterfly Runners Fly High!
Wow! What a fabulous day at the Queen Elizabeth Olympic Park yesterday for our 2024 Butterfly Run!...
23 July, 2024
Cure EB Family Forum Hand Hackathon
Sharmila and Kate were joined by Natasha to host a 'Hand Hackathon' at our July Family Forum. ...
06 December, 2023
All I Want for Christmas is a Cure – Family Forum December 2023
Sharmila and Kate enjoyed getting together with other EB families yesterday at our December Family Forum online event. They discussed our current research projects and the EB research landscape in general....
28 September, 2023
Cure EB Family Day 2023
It was wonderful to connect with old friends and lovely to meet some new faces at our annual Family Day on Sunday 24th September....
18 July, 2023
Focus on B-VEC – Family Forum July 2023
We were delighted to be joined by Peter Marinkovich and Suma Krishnan last week to talk about B-VEC (Vyjuvek), a gene therapy gel approved by the FDA for the treatment of wounds in dystrophic EB....