Author: Amy

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10 June, 2026

The training has been tough, the climb will be tougher, but they're motivated by the suffering of children like Poppy, Sohana and Darcy who are challenged by EB everyday....

31 March, 2026

We were delighted to welcome donors, researchers, clinicians, partners and EB families to our Research the Cure Update Evening in London earlier this month....

02 February, 2026

Cure EB was delighted to be a gold sponsor of EB2026. Attending the congress was a great opportunity to be in the company of brilliant researchers, clinicians, charities, companies and of course and most importantly, families living with EB....

04 December, 2025

Hosted at Orrery in London’s Marylebone, our Butterfly Speaker Lunch began with champagne on the balcony, followed by a sumptuous three course lunch and the hilarious Stephen Mangan in conversation with Hadley Freeman!...

07 October, 2025

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]Cure EB Family Day is one of the highlights of our year, and this year's event was no exception! Held once again at Timber Lodge at the Queen Elizabeth Olympic Park in London, EB families came together with...

17 June, 2025

Cure EB was happy to partner on an EB research priority setting project with the James Lind Alliance and several EB charities....

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