Rare Disease Day 2025
It's Rare Disease Day! Plus Krystal's Vyjuvek gets a positive opinion from the CHMP!...
It's Rare Disease Day! Plus Krystal's Vyjuvek gets a positive opinion from the CHMP!...
[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]It was wonderful to have Prof Dimitra Kiritsi, Professor of Dermatology at the Aristotle University of Thessaloniki at our Family Forum online last month. As part of her interesting and informative talk, Dimitra outlined the reasons researchers decided...
Mishal Husein and Hadley Freeman kept us captivated at our Butterfly Speaker Lunch, which marked the start of our Big Give week...
We are still buzzing from a fantastic Sunday afternoon spent with other EB families, EB researchers & clinicians at the Queen Elizabeth Olympic Park in London....
Wow! What a fabulous day at the Queen Elizabeth Olympic Park yesterday for our 2024 Butterfly Run!...
[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text]We were delighted to have Prof Katsuto Tamai from Osaka University to talk about his novel approach to treating severe dystrophic epidermolysis bullosa. Prof Tamai outlined his research into gene-modified blister fluid-derived mesenchymal stromal cells (MSCs) to treat RDEB.[/vc_column_text][/vc_column][/vc_row][vc_row...
We are excited to announce that Jason Isaacs has joined the Cure EB family as our newest Patron....
Sharmila and Kate were joined by Natasha to host a 'Hand Hackathon' at our July Family Forum. ...
We were delighted to be joined by Dr Ciro Chiappini from King's College London to hear about his nanoneedle research at our Research the Cure webinar last month. ...
We were delighted to welcome donors, researchers, clinicians and EB families to our Research Evening at the Royal Institution in London...