Author: Amy

Home > Articles by: Amy
28 February, 2025

It's Rare Disease Day! Plus Krystal's Vyjuvek gets a positive opinion from the CHMP!...

17 January, 2025

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]It was wonderful to have Prof Dimitra Kiritsi, Professor of Dermatology at the Aristotle University of Thessaloniki at our Family Forum online last month. As part of her interesting and informative talk, Dimitra outlined the reasons researchers decided...

02 October, 2024

We are still buzzing from a fantastic Sunday afternoon spent with other EB families, EB researchers & clinicians at the Queen Elizabeth Olympic Park in London....

30 September, 2024

Wow! What a fabulous day at the Queen Elizabeth Olympic Park yesterday for our 2024 Butterfly Run!...

19 September, 2024

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text]We were delighted to have Prof Katsuto Tamai from Osaka University to talk about his novel approach to treating severe dystrophic epidermolysis bullosa. Prof Tamai outlined his research into gene-modified blister fluid-derived mesenchymal stromal cells (MSCs) to treat RDEB.[/vc_column_text][/vc_column][/vc_row][vc_row...

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