Amy, Author at Cure EB

20 May, 2026

MHRA approves Krystal’s Vyjuvek

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]The Medicines and Healthcare Products Regulatory Agency (MHRA) has approved the use of B-Vec (Vyjuvek) developed by Krystal Biotech Inc., for the treatment of Dystrophic Epidermolysis Bullosa in patients from birth onwards. B-Vec is a topical gene therapy...

31 March, 2026

Research Update at the Royal Institution

We were delighted to welcome donors, researchers, clinicians, partners and EB families to our Research the Cure Update Evening in London earlier this month....

02 February, 2026

Cure EB take part in EB 2026 Congress

Cure EB was delighted to be a gold sponsor of EB2026. Attending the congress was a great opportunity to be in the company of brilliant researchers, clinicians, charities, companies and of course and most importantly, families living with EB....

04 December, 2025

Butterfly Speaker Lunch 2025

Hosted at Orrery in London’s Marylebone, our Butterfly Speaker Lunch began with champagne on the balcony, followed by a sumptuous three course lunch and the hilarious Stephen Mangan in conversation with Hadley Freeman!...

07 October, 2025

Cure EB Family Day 2025

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]Cure EB Family Day is one of the highlights of our year, and this year's event was no exception! Held once again at Timber Lodge at the Queen Elizabeth Olympic Park in London, EB families came together with...

06 October, 2025