Research the Cure – EBSkinEdit
Prof Fernando Larcher joined Sharmila to talk about EBSkinEdit, a translational research project towards a genome editing-based treatment for EB....
15 June, 2026
Author: Amy
10 June, 2026
3 Mums, 1 Mountain, 1 Mission
The training has been tough, the climb will be tougher, but they're motivated by the suffering of children like Poppy, Sohana and Darcy who are challenged by EB everyday....
29 May, 2026
Silver Butterfly Dinner 2026
200 people in a room with one mission, to cure EB. In our 15th year, we held our flagship fundraising event for EB research, the Silver Butterfly Dinner, a special and moving evening. ...
20 May, 2026
MHRA approves Krystal’s Vyjuvek
B-Vec (Vyjuvek) is a topical gene therapy gel which can be applied to DEB wounds....
31 March, 2026
Research Update at the Royal Institution
We were delighted to welcome donors, researchers, clinicians, partners and EB families to our Research the Cure Update Evening in London earlier this month....
02 February, 2026
Cure EB take part in EB 2026 Congress
Cure EB was delighted to be a gold sponsor of EB2026. Attending the congress was a great opportunity to be in the company of brilliant researchers, clinicians, charities, companies and of course and most importantly, families living with EB....
15 December, 2025
Research the Cure – Immune therapy for RDEB SCC
[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]Thank you to Prof Jakub Tolar for joining us earlier this month for our final Research the Cure Webinar of the year. Jakub is an internationally recognized physician and researcher, known for his care of patients with RDEB....
04 December, 2025
Butterfly Speaker Lunch 2025
Hosted at Orrery in London’s Marylebone, our Butterfly Speaker Lunch began with champagne on the balcony, followed by a sumptuous three course lunch and the hilarious Stephen Mangan in conversation with Hadley Freeman!...
07 October, 2025
Cure EB Family Day 2025
[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]Cure EB Family Day is one of the highlights of our year, and this year's event was no exception! Held once again at Timber Lodge at the Queen Elizabeth Olympic Park in London, EB families came together with...
06 October, 2025
Ran, walked or wheeled? Butterfly Run 2025 results
What a fabulous day at the Queen Elizabeth Olympic Park for our Butterfly Run 2025!...