Sep 29 2022 Family Day – Community, Fun & the Latest Research
Sunday 25th September saw the return of Cure EB’s Family Day!
After a break due to the pandemic, it was wonderful to be back together at the Queen Elizabeth Olympic Park in London – catching up with old friends and meeting some new faces too!
Our Family Day is a chance for EB families to connect with each other, while catching up on the latest EB research news.
We are so grateful to our panel of speakers:
- Prof. John McGrath (Professor of Molecular Dermatology and Head of the Genetic Skin Disease Group at King’s College London)
- Prof. Andrew South (Sidney Kimmel Cancer Center Thomas Jefferson University, USA)
- Dr Gabriela Petrof (Consultant Dermatologist Great Ormond Street Hospital, London)
- Janet Hansen, Sophie Randall, Alethia Salmon and Dr. Pablo Lopez Balboa (Great Ormond Street EB team, London)
Our biggest thanks go to the EB families that joined us – we hope you enjoyed the day as much as we did! If you would like to keep up to date with EB research and our search for a cure, you may wish to join our Family Forum.
Our Family Day was funded in part by a grant from Amryt Pharma, as well as sponsorship from: