Research Events

25 November, 2024

Research the Cure November 2024 – Gene Editing in EB

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column width="1/2"][vc_column_text css=""]Thanks to Dr Joanna Jacków who joined us last week to talk about gene editing in EB. Click on the video to watch an excerpt from the webinar where Joanna explains CRISPR gene editing.[/vc_column_text][vc_column_text css=""]You can read...

19 September, 2024

Research the Cure webinar September 2024 – eMSCs in RDEB

Prof Tamai joined us to outline his research into gene-modified blister fluid-derived mesenchymal stromal cells (MSCs) to treat RDEB....

01 July, 2024

Research the Cure webinar June 2024 – Nanoneedles in EB

We were delighted to be joined by Dr Ciro Chiappini from King's College London to hear about his nanoneedle research at our Research the Cure webinar last month. ...

28 March, 2024

Research Evening at the Royal Institution

We were delighted to welcome donors, researchers, clinicians and EB families to our Research Evening at the Royal Institution in London...

30 November, 2023

Research the Cure webinar – EB-associated squamous cell carcinoma

Prof Andrew South has been researching EB-associated cancer for more than a decade and we were grateful he could join us....

28 September, 2023

Cure EB Family Day 2023

It was wonderful to connect with old friends and lovely to meet some new faces at our annual Family Day on Sunday 24th September....

25 May, 2023

Research the Cure webinar – Be Prepared

In our recent Research the Cure webinar, we were delighted to have Prof John McGrath and Prof Jakub Tolar join us to discuss being prepared for EB treatments, today and in the future....

04 April, 2023

To the Point Research Update Evening

For the first time since the pandemic, we were able to host a Research Update Evening on 28 March 2023. We were delighted to have Prof John McGrath, Dr Joanna Jacków, and Prof Alain Hovnanian speak at the event....

01 March, 2023

Research the Cure webinar – EB research landscape

In the lead-up to Rare Disease Day, we held the first of our new series of research webinars – Research the Cure - with Prof John McGrath....