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30 September, 2026

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column width="2/3"][vc_column_text] This month our Research the Cure webinar was an information session with Dr Robert Ryan, CEO of Paradigm Therapeutics, regarding their upcoming phase III clinical trial for patients with EB Simplex, RDEB or Junctional non-Herlitz EB. Thank you...

15 June, 2026

Prof Fernando Larcher joined Sharmila to talk about EBSkinEdit, a translational research project towards a genome editing-based treatment for EB....

31 March, 2026

We were delighted to welcome donors, researchers, clinicians, partners and EB families to our Research the Cure Update Evening in London earlier this month....

15 December, 2025

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]Thank you to Prof Jakub Tolar for joining us earlier this month for our final Research the Cure Webinar of the year. Jakub is an internationally recognized physician and researcher, known for his care of patients with RDEB....

01 October, 2025

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]We were delighted to have Dr Ganna Bilousova join us last month for a Research the Cure webinar. Ganna (Anya) is an Associate Professor of Dermatology at the University of Colorado Anschutz Medical Campus. Her laboratory is focused...

31 March, 2025

This month we held our annual Research the Cure Update Evening with patron Damian Lewis and a fantastic group of speakers and panelists....

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