Research Events

We were delighted to welcome donors, researchers, clinicians, partners and EB families to our Research the Cure Update Evening in London earlier this month....

This month we held our annual Research the Cure Update Evening with patron Damian Lewis and a fantastic group of speakers and panelists....

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column width="1/2"][vc_column_text css=""]Thanks to Dr Joanna Jacków who joined us last week to talk about gene editing in EB. Click on the video to watch an excerpt from the webinar where Joanna explains CRISPR gene editing.[/vc_column_text][vc_column_text css=""]You can read...

It was wonderful to connect with old friends and lovely to meet some new faces at our annual Family Day on Sunday 24th September....

In our recent Research the Cure webinar, we were delighted to have Prof John McGrath and Prof Jakub Tolar join us to discuss being prepared for EB treatments, today and in the future....