Research the Cure – EBSkinEdit
Prof Fernando Larcher joined Sharmila to talk about EBSkinEdit, a translational research project towards a genome editing-based treatment for EB....
15 June, 2026
Research Events
31 March, 2026
Research Update at the Royal Institution
We were delighted to welcome donors, researchers, clinicians, partners and EB families to our Research the Cure Update Evening in London earlier this month....
15 December, 2025
Research the Cure – Immune therapy for RDEB SCC
[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]Thank you to Prof Jakub Tolar for joining us earlier this month for our final Research the Cure Webinar of the year. Jakub is an internationally recognized physician and researcher, known for his care of patients with RDEB....
01 October, 2025
Research the Cure webinar September 2025 – Dr Ganna Bilousova
[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]We were delighted to have Dr Ganna Bilousova join us last month for a Research the Cure webinar. Ganna (Anya) is an Associate Professor of Dermatology at the University of Colorado Anschutz Medical Campus. Her laboratory is focused...
30 April, 2025
Research the Cure webinar April 2025 – Mission EB
Dr Anna Martinez was lead investigator on Mission EB - the first large-scale stem cell clinical trial for children with EB....
31 March, 2025
Research the Cure Update Evening
This month we held our annual Research the Cure Update Evening with patron Damian Lewis and a fantastic group of speakers and panelists....
25 November, 2024
Research the Cure November 2024 – Gene Editing in EB
Thanks to Dr Joanna Jacków who joined us last week to talk about gene editing in EB....
19 September, 2024
Research the Cure webinar September 2024 – eMSCs in RDEB
Prof Tamai joined us to outline his research into gene-modified blister fluid-derived mesenchymal stromal cells (MSCs) to treat RDEB....
01 July, 2024
Research the Cure webinar June 2024 – Nanoneedles in EB
We were delighted to be joined by Dr Ciro Chiappini from King's College London to hear about his nanoneedle research at our Research the Cure webinar last month. ...
28 March, 2024
Research Evening at the Royal Institution
We were delighted to welcome donors, researchers, clinicians and EB families to our Research Evening at the Royal Institution in London...