Save the date for our EB Family Day on Sunday 4th October 2026!
If you or a family member have EB, then join us at the Queen Elizabeth Olympic Park for lunch and hear from EB experts, while the children are entertained with games and crafts.
Our EB Family Day is a free event for our wonderful EB community to come together, have fun and catch up on the latest EB research news.
More details and how to book coming soon!