Oct 19 2026 EB Awareness Week 2026
This year, EB Awareness Week runs from Sunday 25th October to Saturday 31st October. It is an international campaign to increase awareness of epidermolysis bullosa, a rare genetic skin condition.
Epidermolysis Bullosa, or EB, is hard to say and hell to live with. Our mission at Cure EB is to find a cure for EB.
We are dedicated to finding effective treatments and a cure for EB, and the only way to do this is through research. The more awareness we can raise of EB, the more support we can generate, and the more funding we can put into research – and the closer we can get to a cure! When you donate to Cure EB, 100% of your donation goes to fund research as our costs are underwritten. Find out more about our research projects.
We’d love you to help us tell more people about EB!
Don’t know much about EB? Start here…
- Epidermolysis Bullosa, or EB for short, is very painful
- It causes blisters and skin loss all over the body, inside and out
- It leads to malignant skin cancer in severe types
- Everyday tasks that most people take for granted can be incredibly painful for those with EB – eating, drinking, sleeping, walking…
- Taking care of EB skin can take hours of painful dressing changes every day
- There is no cure
- We need to research the cure to end EB pain
To find out more about the realities of living with EB, visit our Faces of EB page or read about the different types of EB.
#InsideOutforEB
This #EBAwareness week we’re taking part in #InsideOutforEB with Debra International and other EB charities around the world to
- raise awareness of EB, and
- raise vital funds for EB research.
Wearing your clothes inside out highlights a daily reality for children with EB, who often wear clothing this way to avoid painful seams against their fragile skin.
How to take part
- Wear your clothes inside out for an hour, a day, or the whole week and explain why you’re doing it to the people you meet
- Take part on your own, with your family, friends or colleagues
- Share photos & videos on social media with your clothes inside out. You can even share some facts about EB (see above) and don’t forget to tag us on Facebook Instagram LinkedIn
- Donate or set up a fundraiser to help us fund vital research into effective treatments and a cure for EB