For the first time since the pandemic, we were able to host a Research Update Evening on 28 March 2023. We were delighted to have Prof John McGrath, Dr Joanna Jacków, and Prof Alain Hovnanian speak at the event....
In the lead-up to Rare Disease Day, we held the first of our new series of research webinars – Research the Cure - with Prof John McGrath....
After a break due to the pandemic, it was wonderful to be back together at the Queen Elizabeth Olympic Park in London – catching up with old friends and meeting some new faces too!...
Wow! What a fantastic day we had on Sunday. The sun shone and so did the smiles of our runners and supporters. The results are in...
We are absolutely thrilled that our Silver Butterfly Dinner at RIBA raised £352,000 for EB research. You can have a look at some of the photos below...
Thank you to everyone who came to or supported the Walk On The Wild Side event at London Zoo last week. It was wonderful to get together with so many of you and to share updates and reflections...
We had a fabulous day yesterday for our Butterfly Run 2019. Thank you everyone for coming and giving your all!...
Our Silver Butterfly Dinner raised over £310,000 this year, held once again at the beautiful Royal Institute of Architects. Another fun night was had by all....
Cure EB supporters enjoyed lunch with fizz and fascinating conversation in the stunning setting of the Zaha Hadid designed Magazine Restaurant in Kensington Gardens....
Sun and fun at the Cure EB Butterfly Run and Family Day! Such a beautiful course at Queen Elizabeth Olympic Park....