The National Institute for Health and Care Excellence (NICE) have recommended Filsuvez for the treatment of open wounds in junctional and dystrophic epidermolysis bullosa in the UK....
We're thrilled to be able to announce that we have been chosen by BBC Radio 4 to be the subject of one of their appeals this year!...
As 2022 draws to a close, we are taking a moment to reflect on this year....
We are absolutely thrilled that our Silver Butterfly Dinner at RIBA raised £352,000 for EB research. You can have a look at some of the photos below...
We can't quite believe it, but for an incredible 10 years (!) now we have been working towards what we believe is a real possibility: effective treatments and a cure for EB. To celebrate this crazy milestone we've published an extra special annual newsletter which contains all...
In collaboration with Great Ormond Street Hospital and Children's Charity (GOSH) and the NIHR we are so pleased that Mission EB has started, the first large-scale stem cell clinical trial for children with EB. Researchers from GOSH have begun the largest ever stem cell clinical trial for...
Thank you to everyone who came to or supported the Walk On The Wild Side event at London Zoo last week. It was wonderful to get together with so many of you and to share updates and reflections...
Jodie Comer was on hand (or at least, on zoom!) on 11th September this year to represent Cure EB at BGC and Cantor Fitzgerald’s annual charity day, this year held virtually....
We had a fabulous day yesterday for our Butterfly Run 2019. Thank you everyone for coming and giving your all!...
Our Silver Butterfly Dinner raised over £310,000 this year, held once again at the beautiful Royal Institute of Architects. Another fun night was had by all....