Butterfly Run and Family Day 2019
We had a fabulous day yesterday for our Butterfly Run 2019. Thank you everyone for coming and giving your all!...
23 September, 2019
Author: liz
30 May, 2019
2019 Silver Butterfly Dinner returns to RIBA
Our Silver Butterfly Dinner raised over £310,000 this year, held once again at the beautiful Royal Institute of Architects. Another fun night was had by all....
30 November, 2018
Butterfly Brunch Club in Conversation with Mishal Husain and Hadley Freeman
Cure EB supporters enjoyed lunch with fizz and fascinating conversation in the stunning setting of the Zaha Hadid designed Magazine Restaurant in Kensington Gardens....
30 September, 2018
Sun and fun at the Cure EB Butterfly Run 2018
Sun and fun at the Cure EB Butterfly Run and Family Day! Such a beautiful course at Queen Elizabeth Olympic Park....
06 September, 2018
Sohana in BBC Three’s ‘Me & My Butterfly Skin’
Sohana talks through what EB is like as a teenager in BBC Three’s Living Differently series....
14 September, 2017
Fantastic GFI Charity Day 2017
What a fantastic day we had at the GFI Charity Day this year, thank you to our Patron Damian Lewis for taking the phones...
03 September, 2017
Parallel London & Family Day 2017
Thank you and well done to all the families that took part in Parallel London's 100m, 1k, 5k and 10k races this weekend....
29 May, 2017
10K runners cross the finish line
Congratulations to all of our runners at the Vitality 10K in London this weekend!...
18 May, 2017
RIBA shines once again for Silver Butterfly Dinner 2017
Thank you to everyone that joined us for our 2017 Silver Butterfly Dinner, again hosted in the fantastic Florence Hall at...
07 December, 2016
Cadogan Hall Concert
Thank you to the London International Orchestra, whose 30th Anniversary concert was given in support of Sohana Research Fund this year....