Butterfly Brunch Club in Conversation with Mishal Husain and Hadley Freeman
Cure EB supporters enjoyed lunch with fizz and fascinating conversation in the stunning setting of the Zaha Hadid designed Magazine Restaurant in Kensington Gardens....
Cure EB supporters enjoyed lunch with fizz and fascinating conversation in the stunning setting of the Zaha Hadid designed Magazine Restaurant in Kensington Gardens....
Sun and fun at the Cure EB Butterfly Run and Family Day! Such a beautiful course at Queen Elizabeth Olympic Park....
Sohana talks through what EB is like as a teenager in BBC Three’s Living Differently series....
What a fantastic day we had at the GFI Charity Day this year, thank you to our Patron Damian Lewis for taking the phones...
Thank you and well done to all the families that took part in Parallel London's 100m, 1k, 5k and 10k races this weekend....
Congratulations to all of our runners at the Vitality 10K in London this weekend!...
Thank you to everyone that joined us for our 2017 Silver Butterfly Dinner, again hosted in the fantastic Florence Hall at...
Thank you to the London International Orchestra, whose 30th Anniversary concert was given in support of Sohana Research Fund this year....