Apr 08 2022 10 years of Cure EB
We can’t quite believe it, but for an incredible 10 years (!) now we have been working towards what we believe is a real possibility: effective treatments and a cure for EB.
To celebrate this crazy milestone we’ve published an extra special annual newsletter which contains all our latest research updates, as well as creating a summary of our 10-year impact and our hopes for the next decade. Do have a read, or let us know if you’d like to receive a copy in the post.
We want to thank everyone who has helped us to get to this point, for all your energy, generosity and support over the last ten years – we truly couldn’t have come this far without you!
In 10 years we don’t want to need to exist and we do really need your help to keep us going forward. If you feel able, we have introduced various new ways to support us and excitingly some of our most loved events are back!
Join our Kaleidoscope
Regular giving is so important to charities to show sustainable income and to allow future planning and to unlock larger grants. We are introducing a Kaleidoscope friends scheme to build up our sustainable income base. Could this be part of your giving?
Silver Butterfly Dinner
Tickets are now available for our Silver Butterfly Dinner, to be held in the majestic Florence Hall at the Royal Institute of British Architects on 19th May. An evening of champagne, dinner, jazz and auctions, it’s always loads of fun! Grab some friends and bring a table of 10 or buy individual tickets at £250 each by contacting us.