EB Family Day Fun
We are still buzzing from a fantastic Sunday afternoon spent with other EB families, EB researchers & clinicians at the Queen Elizabeth Olympic Park in London....
02 October, 2024
Author: Amy
30 September, 2024
Butterfly Runners Fly High!
Wow! What a fabulous day at the Queen Elizabeth Olympic Park yesterday for our 2024 Butterfly Run!...
19 September, 2024
Research the Cure webinar September 2024 – eMSCs in RDEB
Prof Tamai joined us to outline his research into gene-modified blister fluid-derived mesenchymal stromal cells (MSCs) to treat RDEB....
30 July, 2024
Jason Isaacs joins Cure EB as patron
We are excited to announce that Jason Isaacs has joined the Cure EB family as our newest Patron....
23 July, 2024
Cure EB Family Forum Hand Hackathon
Sharmila and Kate were joined by Natasha to host a 'Hand Hackathon' at our July Family Forum. ...
01 July, 2024
Research the Cure webinar June 2024 – Nanoneedles in EB
We were delighted to be joined by Dr Ciro Chiappini from King's College London to hear about his nanoneedle research at our Research the Cure webinar last month. ...
28 March, 2024
Research Evening at the Royal Institution
We were delighted to welcome donors, researchers, clinicians and EB families to our Research Evening at the Royal Institution in London...
20 December, 2023
FDA Approves Filsuvez for Junctional and Dystrophic EB
The FDA has approved Chiesi's Filsuvez for partial thickness wounds associated with dystrophic (DEB) and junctional epidermolysis bullosa (JEB) in patients 6 months and older. This follows approval of the treatment by the European Commission in June 2022, as well as NICE's recommendation for use...
06 December, 2023
All I Want for Christmas is a Cure – Family Forum December 2023
Sharmila and Kate enjoyed getting together with other EB families yesterday at our December Family Forum online event. They discussed our current research projects and the EB research landscape in general....
30 November, 2023
Research the Cure webinar – EB-associated squamous cell carcinoma
Prof Andrew South has been researching EB-associated cancer for more than a decade and we were grateful he could join us....