Silver Butterfly Dinner 2026
Join us on Thursday 14th May for a night of champagne, dinner, entertainment and auctions in the stunning surroundings of One Marylebone. Tickets can be purchased individually or as a table of ten.
6 events found.
Events
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Research the Cure webinar – EBSkinEdit with Prof Fernando Larcher
OnlineGene edited skin in RDEB Join Sharmila Collins as she talks to Prof Fernando Larcher about EBSkinEdit, a gene-edited skin for RDEB, gene editing research funded by Cure EB. This webinar is free to join and open to all with an interest in EB. There...
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Brave Wings Festival
Highgate Junior School 3 Bishopswood Rd, London, United KingdomFamily festival for all ages! We are heading back to Highgate School for an even bigger and better, family-focused festival this summer. Join us for a brilliant afternoon of activities for all ages including crafts, games and live music, with food trucks, ice-cream, coffee, cakes,...
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Butterfly Run 2026
Queen Elizabeth Olympic Park, LondonOn Sunday 4th October, we'll be back at the Queen Elizabeth Olympic Park in London, for our fun, friendly and inclusive Butterfly Run! Our event has something for everyone - we encourage as many people of all abilities to run, walk, wheel, or whatever they...
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EB Family Day 2026
Queen Elizabeth Olympic Park, LondonEB Family Day If you or a family member have EB, then join us at the Queen Elizabeth Olympic Park on Sunday 4th October! Join us for lunch and then, while the adults hear from the EB experts, the children will be entertained with games...
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London Marathon 2027
The TCS London Marathon is an incredible experience! Taking place on Sunday 25 April 2027 , the route takes in many of London’s best landmarks including Buckingham Palace, the Cutty Sark, Tower Bridge and Canary Wharf. With a charity place from Cure EB you could...