EB Family Day 2026

EB research progress 2026 – Prof John McGrath

John is Professor of Molecular Dermatology and Head of the Genetic Skin Disease Unit at King’s College London, and a Consultant based at Guy’s Hospital in London, where he is Head of the St John’s Institute of Dermatology. He is an internationally renowned expert in EB, and a past president of the European Society for Dermatological Research.

Upcoming decorin clinical trial – Prof Jemima Mellerio

Jemima is a Consultant Dermatologist and lead of the National Adult EB service at Guy’s and St Thomas’ hospital. She is on the executive committees of the British Association of Dermatologists, the British Society of Paediatric and Adolescent Dermatology, and the International Society of Pediatric Dermatology. She is also a Fellow of the Royal College of Physicians.

Blister fluid collection and gene editing – Dr Joanna Jacków-Malinowska & Aidin Kazemizadeh

Joanna is a molecular dermatology researcher and Senior Lecturer at the St John’s Institute of Dermatology, King’s College London, where she leads a research programme focused on developing next-generation therapies for genetic skin diseases and skin cancer. Her research centres on translational genome editing and advanced delivery technologies, including lipid nanoparticles, to develop precision treatments for rare inherited skin disorders such as EB.

Aidin is a final-year PhD researcher at King’s College London under the supervision of Dr Joanna Jackow-Malinówska and Prof John McGrath. His research, funded by the British Skin Foundation and Cure EB, focuses on developing base and prime editing strategies to correct pathogenic variants that cause dystrophic EB.

EB hand therapy – Mr Ricardo Tejero-Trujeque & Andrea Cudazzo

Ricardo is a Specialty Doctor in Plastic, Reconstructive and Hand Surgery at Guy’s and St Thomas’ Hospital, where he also leads the plastic surgical care of patients with EB. He is a faculty member on national and international training courses, including EB courses at GOSH and Guy’s and St Thomas’.

Andrea is an occupational therapist with over a decade specialising in hand therapy. He works as a Senior Specialist Hand Therapist, a role that spans hand trauma, plastic surgery hand cases and orthopaedics, management of chronic hand and upper limb conditions, as well as working with EB patients in the Rare Diseases Centre.