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  • vase of purple and blue flowers on a table dressed for a galal dinner

    Silver Butterfly Dinner 2026

    Save the date for a night of champagne, dinner, entertainment and auctions in the stunning surroundings of One Marylebone.

  • Butterfly Run 2026

    Queen Elizabeth Olympic Park, London

    Save the date for our Butterfly Run 2026! On Sunday 4th October, we'll be back at the Queen Elizabeth Olympic Park in London, for our fun, friendly and inclusive event that has something for everyone! We encourage as many people of all abilities to run,...

  • EB Family Day 2026

    Queen Elizabeth Olympic Park, London

    Save the date for our EB Family Day on Sunday 4th October 2026! If you or a family member have EB, then join us at the Queen Elizabeth Olympic Park for lunch and hear from EB experts, while the children are entertained with games and...