Stephen Mangan in conversation with Hadley Freeman To launch our Big Give Christmas Challenge week we invite you to our fabulous Butterfly Speaker Lunch at the elegant French restaurant, Orrery, in the heart of Marylebone on 2nd December. We are thrilled to have Stephen Mangan,...
Change of date Due to unforeseen circumstances, our webinar with Prof Jakub Tolar is now on Thursday 11th December at 2pm. If you had already registered, your place has been transferred. We apologise for any inconvenience this may cause. Registration remains open to all. Immune...
The TCS London Marathon is an incredible experience! Taking place on Sunday 26 April 2026 , the route takes in many of London’s best landmarks including Buckingham Palace, the Cutty Sark, Tower Bridge and Canary Wharf. With a charity place from Cure EB you could...
Join us on Thursday 14th May for a night of champagne, dinner, entertainment and auctions in the stunning surroundings of One Marylebone. Tickets can be purchased individually or as a table of ten.
Gene edited skin in RDEB Join Sharmila Collins as she talks to Prof Fernando Larcher about EBSkinEdit, a gene-edited skin for RDEB. This webinar is free to join and open to all with an interest in EB. There will be an opportunity to ask questions,...
Save the Date for our Brave Wings Festival.
On Sunday 4th October, we'll be back at the Queen Elizabeth Olympic Park in London, for our fun, friendly and inclusive Butterfly Run! Our event has something for everyone - we encourage as many people of all abilities to run, walk, wheel, or whatever they...
Save the date for our EB Family Day on Sunday 4th October 2026! If you or a family member have EB, then join us at the Queen Elizabeth Olympic Park for lunch and hear from EB experts, while the children are entertained with games and...
The TCS London Marathon is an incredible experience! Taking place on Sunday 25 April 2027 , the route takes in many of London’s best landmarks including Buckingham Palace, the Cutty Sark, Tower Bridge and Canary Wharf. With a charity place from Cure EB you could...