• Research the Cure webinar – September 2025

    Online

    Development of a personalized stem cell therapy for RDEB delivered by cell suspension Prof Ganna (Anya) Bilousova is joining us to talk about the pre-clinical development of a personalized stem cell therapy for recessive dystrophic epidermolysis bullosa delivered via cell suspension.When? Thursday 25th September 2025,...

  • Butterfly Run 2025

    Queen Elizabeth Olympic Park, London

    Our Butterfly Run is back on Sunday 5th October 2025 at Queen Elizabeth Olympic Park in London. Book now!Please get in touch ([email protected]) if you are interested in sponsoring the event or being one of our charity partners.

  • Family Day 2025

    Cure EB Family Day is a free event for our wonderful EB community to come together, have fun and catch up on the latest EB research news. If you or a family member have EB, then join us for lunch, and then while the adults...

  • Research the Cure webinar – November 2025

    Online

    Immune & cell therapy for RDEB SCC Prof Jakub Tolar (University of Minnesota) is joining us to talk about his research into immune and cell therapy for recessive dystrophic EB (RDEB) associated squamous cell carcinoma (SCC). You can read more about this research project here.When? ...

  • Butterfly Speaker Lunch

    Save the Date! Put Tuesday 2 December in your diary to join us for our next Butterfly Speaker Lunch. With good food, great company and fascinating discussions it's one not to miss. More details coming soon!

  • London Marathon 2026

    The TCS London Marathon is an incredible experience! Taking place on Sunday 26 April 2026 , the route takes in many of London’s best landmarks including Buckingham Palace, the Cutty Sark, Tower Bridge and Canary Wharf. With a charity place from Cure EB you could...