Research the Cure – EBSkinEdit
Prof Fernando Larcher joined Sharmila to talk about EBSkinEdit, a translational research project towards a genome editing-based treatment for EB....
15 June, 2026
EB Research
20 May, 2026
MHRA approves Krystal’s Vyjuvek
B-Vec (Vyjuvek) is a topical gene therapy gel which can be applied to DEB wounds....
02 February, 2026
Cure EB take part in EB 2026 Congress
Cure EB was delighted to be a gold sponsor of EB2026. Attending the congress was a great opportunity to be in the company of brilliant researchers, clinicians, charities, companies and of course and most importantly, families living with EB....
15 December, 2025
Research the Cure – Immune therapy for RDEB SCC
[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]Thank you to Prof Jakub Tolar for joining us earlier this month for our final Research the Cure Webinar of the year. Jakub is an internationally recognized physician and researcher, known for his care of patients with RDEB....
01 October, 2025
Research the Cure webinar September 2025 – Dr Ganna Bilousova
[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]We were delighted to have Dr Ganna Bilousova join us last month for a Research the Cure webinar. Ganna (Anya) is an Associate Professor of Dermatology at the University of Colorado Anschutz Medical Campus. Her laboratory is focused...
15 August, 2025
Mission EB results are in
[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]Regular infusions of mesenchymal stromal cells (MSCs) improved symptoms for some children with RDEB, according to results of the Mission EB clinical trial, which was part funded by Cure EB. Published in eClinicalMedicine, the results show that 30...
17 June, 2025
EB Priority Setting Partnership
Cure EB was happy to partner on an EB research priority setting project with the James Lind Alliance and several EB charities....
30 April, 2025
Research the Cure webinar April 2025 – Mission EB
Dr Anna Martinez was lead investigator on Mission EB - the first large-scale stem cell clinical trial for children with EB....
31 March, 2025
Research the Cure Update Evening
This month we held our annual Research the Cure Update Evening with patron Damian Lewis and a fantastic group of speakers and panelists....
28 February, 2025
Rare Disease Day 2025
It's Rare Disease Day! Plus Krystal's Vyjuvek gets a positive opinion from the CHMP!...