EB Research

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20 May, 2026

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]The Medicines and Healthcare Products Regulatory Agency (MHRA) has approved the use of B-Vec (Vyjuvek) developed by Krystal Biotech Inc., for the treatment of Dystrophic Epidermolysis Bullosa in patients from birth onwards. B-Vec is a topical gene therapy...

02 February, 2026

Cure EB was delighted to be a gold sponsor of EB2026. Attending the congress was a great opportunity to be in the company of brilliant researchers, clinicians, charities, companies and of course and most importantly, families living with EB....

15 August, 2025

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]Regular infusions of mesenchymal stromal cells (MSCs) improved symptoms for some children with RDEB, according to results of the Mission EB clinical trial, which was part funded by Cure EB. Published in eClinicalMedicine, the results show that 30...

17 June, 2025

Cure EB was happy to partner on an EB research priority setting project with the James Lind Alliance and several EB charities....

31 March, 2025

This month we held our annual Research the Cure Update Evening with patron Damian Lewis and a fantastic group of speakers and panelists....

28 February, 2025

It's Rare Disease Day! Plus Krystal's Vyjuvek gets a positive opinion from the CHMP!...

17 January, 2025

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]It was wonderful to have Prof Dimitra Kiritsi, Professor of Dermatology at the Aristotle University of Thessaloniki at our Family Forum online last month. As part of her interesting and informative talk, Dimitra outlined the reasons researchers decided...

25 November, 2024

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column width="1/2"][vc_column_text css=""]Thanks to Dr Joanna Jacków who joined us last week to talk about gene editing in EB. Click on the video to watch an excerpt from the webinar where Joanna explains CRISPR gene editing.[/vc_column_text][vc_column_text css=""]You can read...

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