Gala Events

200 people in a room with one mission, to cure EB. In our 15th year, we held our flagship fundraising event for EB research, the Silver Butterfly Dinner, a special and moving evening. ...

We are absolutely thrilled that our Silver Butterfly Dinner at RIBA raised £352,000 for EB research. You can have a look at some of the photos below...

Thank you to everyone who came to or supported the Walk On The Wild Side event at London Zoo last week. It was wonderful to get together with so many of you and to share updates and reflections...

Thank you to the London International Orchestra, whose 30th Anniversary concert was given in support of Sohana Research Fund this year....