Ran, walked or wheeled? Butterfly Run 2025 results
What a fabulous day at the Queen Elizabeth Olympic Park for our Butterfly Run 2025!...
What a fabulous day at the Queen Elizabeth Olympic Park for our Butterfly Run 2025!...
[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]We were delighted to have Dr Ganna Bilousova join us last month for a Research the Cure webinar. Ganna (Anya) is an Associate Professor of Dermatology at the University of Colorado Anschutz Medical Campus. Her laboratory is focused...
Earlier this month, members of our Family Form came together online to discuss how they dress feet...
Cure EB was happy to partner on an EB research priority setting project with the James Lind Alliance and several EB charities....
Dr Anna Martinez was lead investigator on Mission EB - the first large-scale stem cell clinical trial for children with EB....
This month we held our annual Research the Cure Update Evening with patron Damian Lewis and a fantastic group of speakers and panelists....
It's Rare Disease Day! Plus Krystal's Vyjuvek gets a positive opinion from the CHMP!...
[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]It was wonderful to have Prof Dimitra Kiritsi, Professor of Dermatology at the Aristotle University of Thessaloniki at our Family Forum online last month. As part of her interesting and informative talk, Dimitra outlined the reasons researchers decided...
Mishal Husein and Hadley Freeman kept us captivated at our Butterfly Speaker Lunch, which marked the start of our Big Give week...
Thanks to Dr Joanna Jacków who joined us last week to talk about gene editing in EB....