Author: Amy

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01 October, 2025

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]We were delighted to have Dr Ganna Bilousova join us last month for a Research the Cure webinar. Ganna (Anya) is an Associate Professor of Dermatology at the University of Colorado Anschutz Medical Campus. Her laboratory is focused...

17 June, 2025

Cure EB was happy to partner on an EB research priority setting project with the James Lind Alliance and several EB charities....

31 March, 2025

This month we held our annual Research the Cure Update Evening with patron Damian Lewis and a fantastic group of speakers and panelists....

28 February, 2025

It's Rare Disease Day! Plus Krystal's Vyjuvek gets a positive opinion from the CHMP!...

17 January, 2025

[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]It was wonderful to have Prof Dimitra Kiritsi, Professor of Dermatology at the Aristotle University of Thessaloniki at our Family Forum online last month. As part of her interesting and informative talk, Dimitra outlined the reasons researchers decided...

02 October, 2024

We are still buzzing from a fantastic Sunday afternoon spent with other EB families, EB researchers & clinicians at the Queen Elizabeth Olympic Park in London....

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