[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]Thank you to Prof Jakub Tolar for joining us earlier this month for our final Research the Cure Webinar of the year. Jakub is an internationally recognized physician and researcher, known for his care of patients with RDEB....
Hosted at Orrery in London’s Marylebone, our Butterfly Speaker Lunch began with champagne on the balcony, followed by a sumptuous three course lunch and the hilarious Stephen Mangan in conversation with Hadley Freeman!...
[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]Cure EB Family Day is one of the highlights of our year, and this year's event was no exception! Held once again at Timber Lodge at the Queen Elizabeth Olympic Park in London, EB families came together with...
What a fabulous day at the Queen Elizabeth Olympic Park for our Butterfly Run 2025!...
[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]We were delighted to have Dr Ganna Bilousova join us last month for a Research the Cure webinar. Ganna (Anya) is an Associate Professor of Dermatology at the University of Colorado Anschutz Medical Campus. Her laboratory is focused...
Earlier this month, members of our Family Form came together online to discuss how they dress feet...
Cure EB was happy to partner on an EB research priority setting project with the James Lind Alliance and several EB charities....
Dr Anna Martinez was lead investigator on Mission EB - the first large-scale stem cell clinical trial for children with EB....
This month we held our annual Research the Cure Update Evening with patron Damian Lewis and a fantastic group of speakers and panelists....
It's Rare Disease Day! Plus Krystal's Vyjuvek gets a positive opinion from the CHMP!...