[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]Hosted at Orrery in London’s Marylebone, our Butterfly Speaker Lunch began with champagne on the balcony, followed by a sumptuous three course lunch and the hilarious Stephen Mangan in conversation with Hadley Freeman! With some wonderful raffle...
[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]Cure EB Family Day is one of the highlights of our year, and this year's event was no exception! Held once again at Timber Lodge at the Queen Elizabeth Olympic Park in London, EB families came together with...
What a fabulous day at the Queen Elizabeth Olympic Park for our Butterfly Run 2025!...
Earlier this month, members of our Family Form came together online to discuss how they dress feet...
Cure EB was happy to partner on an EB research priority setting project with the James Lind Alliance and several EB charities....
It's Rare Disease Day! Plus Krystal's Vyjuvek gets a positive opinion from the CHMP!...
[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]It was wonderful to have Prof Dimitra Kiritsi, Professor of Dermatology at the Aristotle University of Thessaloniki at our Family Forum online last month. As part of her interesting and informative talk, Dimitra outlined the reasons researchers decided...
Mishal Husein and Hadley Freeman kept us captivated at our Butterfly Speaker Lunch, which marked the start of our Big Give week...
We are still buzzing from a fantastic Sunday afternoon spent with other EB families, EB researchers & clinicians at the Queen Elizabeth Olympic Park in London....
Wow! What a fabulous day at the Queen Elizabeth Olympic Park yesterday for our 2024 Butterfly Run!...