
Oct 02 2024 EB Family Day Fun
We are still buzzing from a fantastic Sunday afternoon spent with other EB families, EB researchers & clinicians at the Queen Elizabeth Olympic Park in London.
We are so grateful to our speakers Prof John McGrath, Dr Joanna Jacków, Dr Anna Martinez and Meena Arora, as well as the other experts that joined our panel to answer questions.




We absolutely love our Family Day as it’s a wonderful opportunity to hear about the latest EB research while the children meet or reconnect with other EB friends, entertained by the brilliant team from Sharky & George. There’s always delicious food, and copious cups of tea to be had, while quizzing an EB expert or catching up with other families.
Thank you so much if you joined us – we hope you enjoyed the day as much as we did and we hope to see you at another of our events (in person or online!) again soon! To keep up to date, why not join our Family Forum, designed by and for people with EB and their families.
Were you there?
We hope you enjoy our photos from the day. We’ll keep adding more here, but we’d love to see your photos too – please tag us if you’re sharing online, or send them to us.
We are grateful to our sponsors for their support of Family Day


