Sathnam Sanghera in conversation with Amelia Gentleman Join us for our fabulous Butterfly Speaker Lunch at the elegant French restaurant, Orrery, in the heart of Marylebone on Wednesday 2nd December. We are thrilled to have Sathnam Sanghera, bestselling author of books including Empireland and the recently...
An event for EB families EB Family Day If you or a family member have EB, then join us at the Queen Elizabeth Olympic Park on Sunday 4th October! Join us for lunch and then, while the adults hear from the EB experts, the children...
On Sunday 4th October, we'll be back at the Queen Elizabeth Olympic Park in London, for our fun, friendly and inclusive Butterfly Run! Our event has something for everyone - we encourage as many people of all abilities to run, walk, wheel, or whatever they...
Phase III trial for a topical whole body treatment for EB patients with Simplex, Recessive Dystrophic and Junctional EB Join Sharmila as she talks to Dr Robert Ryan, Founder and CEO of Paradigm Therapeutics about a phase III clinical trial for a topical cream they are...
Family festival for all ages! We are heading back to Highgate School for an even bigger and better, family-focused festival this summer. Join us for a brilliant afternoon of activities for all ages including crafts, games and live music, with food trucks, ice-cream, coffee, cakes,...
Gene edited skin in RDEB Join Sharmila Collins as she talks to Prof Fernando Larcher about EBSkinEdit, a gene-edited skin for RDEB, gene editing research funded by Cure EB. This webinar is free to join and open to all with an interest in EB. There...
Join us on Thursday 14th May for a night of champagne, dinner, entertainment and auctions in the stunning surroundings of One Marylebone. Tickets can be purchased individually or as a table of ten.
The TCS London Marathon is an incredible experience! Taking place on Sunday 26 April 2026 , the route takes in many of London’s best landmarks including Buckingham Palace, the Cutty Sark, Tower Bridge and Canary Wharf. With a charity place from Cure EB you could...
Change of date Due to unforeseen circumstances, our webinar with Prof Jakub Tolar is now on Thursday 11th December at 2pm. If you had already registered, your place has been transferred. We apologise for any inconvenience this may cause. Registration remains open to all. Immune...
Stephen Mangan in conversation with Hadley Freeman To launch our Big Give Christmas Challenge week we invite you to our fabulous Butterfly Speaker Lunch at the elegant French restaurant, Orrery, in the heart of Marylebone on 2nd December. We are thrilled to have Stephen Mangan,...
Cure EB Family Day is a free event for our wonderful EB community to come together, have fun and catch up on the latest EB research news. If you or a family member have EB, then join us for lunch, and then while the adults...
Our Butterfly Run is back on Sunday 5th October 2025 at Queen Elizabeth Olympic Park in London. Book now!Please get in touch ([email protected]) if you are interested in sponsoring the event or being one of our charity partners.