Cure EB Family Day is a free event for our wonderful EB community to come together, have fun and catch up on the latest EB research news. If you or a family member have EB, then join us for lunch, and then while the adults...

Family festival for all ages! We are heading back to Highgate School for an even bigger and better, family-focused festival this summer. Join us for a brilliant afternoon of activities for all ages including crafts, games and live music, with food trucks, coffee, cakes, cocktails...

Save the date for our EB Family Day on Sunday 4th October 2026! If you or a family member have EB, then join us at the Queen Elizabeth Olympic Park for lunch and hear from EB experts, while the children are entertained with games and...