The TCS London Marathon is an incredible experience! Taking place on Sunday 26 April 2026 , the route takes in many of London’s best landmarks including Buckingham Palace, the Cutty Sark, Tower Bridge and Canary Wharf. With a charity place from Cure EB you could...
Save the date for our Butterfly Run 2026! On Sunday 4th October, we'll be back at the Queen Elizabeth Olympic Park in London, our fun, friendly and inclusive event that has something for everyone! We encourage as many people of all abilities to run, walk,...
Save the date for our EB Family Day on Sunday 4th October 2026! If you or a family member have EB, then join us at the Queen Elizabeth Olympic Park for lunch and hear from EB experts, while the children are entertained with games and...