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X-WR-CALDESC:Events for Cure EB
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DTSTART;TZID=Europe/London:20260604T130000
DTEND;TZID=Europe/London:20260604T140000
DTSTAMP:20260530T125146
CREATED:20260429T101443Z
LAST-MODIFIED:20260511T091628Z
UID:21539-1780578000-1780581600@cure-eb.org
SUMMARY:Research the Cure webinar - EBSkinEdit with Prof Fernando Larcher
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Gene edited skin in RDEB \nJoin Sharmila Collins as she talks to Prof Fernando Larcher about EBSkinEdit\, a gene-edited skin for RDEB\, gene editing research funded by Cure EB. \nThis webinar is free to join and open to all with an interest in EB. \nThere will be an opportunity to ask questions\, but you can also submit questions in advance here.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column]Register now[/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]When? Thursday 4th June 2026\, 1pm \nWhere? Online\, join from wherever you are \nHow? Register online to book your free place.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/3″][vc_single_image image=”21546″ css=”” qode_css_animation=””][/vc_column][vc_column width=”2/3″][vc_column_text css=””]Prof Fernando Larcher is a Principal Investigator in the Epithelial Biomedicine Division at the Biomedical Innovation Department of the public research institute CIEMAT and Associate professor of Biochemistry at the Department of Bioengineering of University Carlos III of Madrid. His research focuses on various aspects of skin regenerative medicine\, including cell and gene therapy for rare skin diseases.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/3″][vc_single_image image=”20828″ css=”” qode_css_animation=””][/vc_column][vc_column width=”2/3″][vc_column_text css=””]Sharmila Collins is founder and trustee of Cure EB. Her oldest daughter\, Sohana\, has RDEB. When Sohana was born in 2002\, there was little prospect of an effective treatment let alone cure. Sharmila and her husband set up Cure EB (formerly the Sohana Research Fund) in 2011 as charity dedicated to funding researcher into effective treatments and a cure for EB.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column]Register now to join this free webinar[/vc_column][/vc_row]
URL:https://cure-eb.org/event/rtc-ebskinedit/
LOCATION:Online
CATEGORIES:Research Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2026/04/260604-Fernando-Larcher-EBSkinEdit-RTC-webinar-feature-image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260628T130000
DTEND;TZID=Europe/London:20260628T173000
DTSTAMP:20260530T125146
CREATED:20260423T112723Z
LAST-MODIFIED:20260529T105543Z
UID:21534-1782651600-1782667800@cure-eb.org
SUMMARY:Brave Wings Festival
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”center” background_image_as_pattern=”without_pattern” z_index=””][vc_column]BOOK NOW[/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””] \nFamily festival for all ages!\nWe are heading back to Highgate School for an even bigger and better\, family-focused festival this summer. Join us for a brilliant afternoon of activities for all ages including crafts\, games and live music\, with food trucks\, coffee\, cakes\, cocktails and more. \nAnd for those under 16 you can also book into one of our additional workshops:[/vc_column_text][vc_column_text css=”.vc_custom_1779975317529{padding-top: 15px !important;}”] \nSilly Science: The Gentle Skin Experiment\nA hands-on children’s science workshop exploring how healthy skin holds together and how EB skin is different. For ages 8-16. \nButterfly Dreamcatchers: Craft Activity\nMake your own ‘Wings of Hope’ in this easy\, playful creative session. For ages 5-12. \nFilm Fun: Make A Music Video\nFeel like a Hollywood A-lister as you make your own pop promo video\, and watch the finished product at your premiere screening! For ages 10-16. \n[/vc_column_text][vc_separator type=”normal”][vc_column_text css=””]Date: Sunday 28th June\nTime: 1.00pm – 5.30pm\nVenue: Highgate Junior School\, 3 Bishopswood Rd\, London N6 4PL[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern” el_id=”ticket_inset” z_index=””][vc_column][vc_text_separator title=”Buy Tickets” border=”no”][vc_empty_space][vc_column_text css=”” el_id=”ticket_inset”]\n      \n        \n      \n    [/vc_column_text][vc_column_text css=””]Please note: When purchasing a ticket\, your personal data will be collected in order to facilitate the management of\, and communications ahead of\, the event. Your email address and mobile number will not be used for further marketing purposes unless you have explicitly asked us to do so. Your postal address may be used for occasional future mailings from which you can opt out at any time\, just let us know on contact@cure-eb.org. For more information see our Privacy Policy. [/vc_column_text][vc_empty_space][vc_text_separator title=”Corporate Sponsors” border=”no”][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/3″][/vc_column][vc_column width=”1/3″][vc_single_image image=”19562″ img_size=”” css=”” qode_css_animation=””][/vc_column][vc_column width=”1/3″][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern” z_index=””][vc_column][vc_separator type=”normal” el_id=”terms_conditions”]\n	\n\n	    \n        Terms & Conditions    \n\n\n    \n        \n        \n    \n\n\n\n    \n        [vc_column_text css=””]1. General Admission \n\nThis General Admission ticket grants entry to the Brave Wings Festival hosted by Cure EB on Sunday 28 June 2026 at the Mills Centre\, Highgate School.\nEntry is permitted only with a valid General Admission ticket. All attendees\, including children\, must have a ticket.\nThese terms and conditions apply to all attendees\, volunteers and staff.\nA General Admission ticket grants the holder admission to the event and access to a range of age-appropriate activities for children as well as access to live music\, food trucks and ice cream vendors.\nIn addition\, there may be other activities which incur an additional charge.  These additional activities can be booked either in advance as per the event flyer or\, subject to availability\, on arrival.  These additional activities may be subject to separate age restrictions.  For example\, there will be a Film School for children aged between 10 and 16 years at an additional cost of £7.50 per child.\nPlease note that animals (other than assistance and guide dogs) are not permitted on site.\n\n2. Children’s Activities \n\nAdult supervision is required for all children under the age of 16. Each accompanying adult must be at least 21 years old and may not supervise more than 5 children unless otherwise agreed with the organisers.\nEach accompanying adult is responsible for the supervision and safety of their child/children at all times during the event.\nParticipation in children’s activities is at attendees’ own risk. While every effort is made to ensure safety\, Cure EB is not liable for minor injuries or accidents.\nThe children’s activities will be run by trained staff and/or volunteers and/or third-party event organisers who have undergone appropriate safeguarding training and Enhanced DBS checks where legally required.\n\n3. Safeguarding and Welfare \n\nCure EB is committed to upholding the highest standards of child protection in line with UK legislation. All staff and volunteers working directly with children have received safeguarding training in line with Cure EB’s Safeguarding Policy.\nThe event will have a Designated Safeguarding Lead (DSL) present at all times. If you have any safeguarding concerns during the event\, please report them immediately to a member of staff who will alert the DSL.\n\n4. Health and Safety \n\nCure EB is committed to ensuring a safe environment for all participants\, especially children. All activities will be risk-assessed and staffed by trained personnel or volunteers. Music will be monitored and its volume kept to safe levels.\nAttendees agree to follow all health and safety guidance displayed throughout the venue and given by event staff.\nFood will be available to purchase and information on ingredients will be available and on display.  Accompanying adults are responsible for checking this information If their child or children has or have allergies or medical conditions.\nIn the event of an emergency\, the organisers reserve the right to contact medical services and administer any necessary first aid.\n\n5. Behaviour and Conduct \n\nThis is a family-friendly event intended to be accessible to all children. Aggressive\, disruptive or inappropriate behaviour will result in removal from the venue.\nNo glass\, alcohol or dangerous items may be brought on site.\n\n6. Photography and Media \n\nBy purchasing a ticket\, you consent to photography and videography which may be used for promotional purposes by Cure EB.\nIf you do not wish for you or your child to be photographed\, please inform event staff upon arrival.\n\n7. Tickets\, Refunds and Cancellations \n\nAll ticket sales are final. No refunds will be issued unless the event is cancelled by Cure EB.\nIn the event of cancellation or postponement\, attendees will be notified by email.\nTickets are non-transferable unless approved by Cure EB.\n\n8. Liability \n\nCure EB\, its staff and volunteers accept no responsibility for loss\, damage or theft of personal belongings.\nAttendance is at attendees’ own risk. While reasonable steps have been taken to ensure a safe and secure environment\, Cure EB shall not be held responsible for any injury or loss unless caused by proven negligence.\n\nBy purchasing a ticket and attending this event\, each attendee agrees to comply with these terms and conditions and our Safeguarding Policy.[/vc_column_text]    \n[/vc_column][/vc_row]
URL:https://cure-eb.org/event/brave-wings-festival-2026/
LOCATION:Highgate Junior School\, 3 Bishopswood Rd\, London\, N6 4PL\, United Kingdom
CATEGORIES:Family Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2026/04/Brave-Wings-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20261004T093000
DTEND;TZID=Europe/London:20261004T123000
DTSTAMP:20260530T125146
CREATED:20260106T121127Z
LAST-MODIFIED:20260319T152453Z
UID:21329-1791106200-1791117000@cure-eb.org
SUMMARY:Butterfly Run 2026
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]On Sunday 4th October\, we’ll be back at the Queen Elizabeth Olympic Park in London\, for our fun\, friendly and inclusive Butterfly Run! \nOur event has something for everyone – we encourage as many people of all abilities to run\, walk\, wheel\, or whatever they can do to complete a 1k\, 5k or 10k race. \nThe 10k race is open to anyone age 13 and over; the 5k and 1k are open to all ages. All entrants will receive a Butterfly Run race t-shirt\, race number\, time chip\, and finisher medal. \nBook now![/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_gallery type=”image_grid” images=”21335\,21128\,21110\,21336\,21338\,21337″ css=”” column_number=”6″ grayscale=”no” images_space=”gallery_with_space”][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_separator type=”normal” color=”#E7BD20″][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””] \nCan we partner with you?\nYou sure can! Please email us at events@cure-eb.org if you are interested in sponsoring the event or being one of our charity partners.[/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/butterfly-run-2026/
LOCATION:Queen Elizabeth Olympic Park\, London\, E20 1DY
CATEGORIES:Sports Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2026/01/Butterfly-Run-2026-900-x-450-px-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20261004T130000
DTEND;TZID=Europe/London:20261004T163000
DTSTAMP:20260530T125146
CREATED:20260106T122621Z
LAST-MODIFIED:20260106T122621Z
UID:21344-1791118800-1791131400@cure-eb.org
SUMMARY:EB Family Day 2026
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Save the date for our EB Family Day on Sunday 4th October 2026! \nIf you or a family member have EB\, then join us at the Queen Elizabeth Olympic Park for lunch and hear from EB experts\, while the children are entertained with games and crafts. \nOur EB Family Day is a free event for our wonderful EB community to come together\, have fun and catch up on the latest EB research news. \nMore details and how to book coming soon![/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/eb-family-day-2026/
LOCATION:Queen Elizabeth Olympic Park\, London\, E20 1DY
CATEGORIES:Family Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2026/01/Family-Day-2026-save-the-date.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20270425
DTEND;VALUE=DATE:20270426
DTSTAMP:20260530T125146
CREATED:20260212T153407Z
LAST-MODIFIED:20260212T154754Z
UID:21465-1808611200-1808697599@cure-eb.org
SUMMARY:London Marathon 2027
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text] \n\n\n\n\n\n\n\nThe TCS London Marathon is an incredible experience! Taking place on Sunday 25 April 2027 \, the route takes in many of London’s best landmarks including Buckingham Palace\, the Cutty Sark\, Tower Bridge and Canary Wharf. \nWith a charity place from Cure EB you could join around 40\,000 other runners attempting the 26.2 mile distance\, cheered on by the hundreds of thousands of spectators lining the streets\, while accelerating research to end the pain of EB. \n\n\n\n\n\n\n\n[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/3″][vc_single_image image=”20432″ img_size=”” css=”” qode_css_animation=””][/vc_column][vc_column width=”1/3″][vc_column_text]Charity places come with a minimum fundraising target. \nIf you would be interested in running for Cure EB in 2027\, do contact us for more information.[/vc_column_text][/vc_column][vc_column width=”1/3″][vc_single_image image=”20433″ img_size=”” css=”” qode_css_animation=””][/vc_column][/vc_row]
URL:https://cure-eb.org/event/london-marathon-2027/
CATEGORIES:Sports Events
ATTACH;FMTTYPE=image/jpeg:https://cure-eb.org/wp-content/uploads/2025/02/London-Marathon-Featured-Image-900x450-1.jpg
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