The TCS London Marathon is an incredible experience! Taking place in April, the route takes in many of London's best landmarks including Buckingham Palace, the Cutty Sark, Tower Bridge and Canary Wharf. If you would be interested in running for Cure EB in 2026, do contact...
Mission EB Dr Anna Martinez is joining us to talk about Mission EB, the first large-scale stem cell clinical trial in EB. Mission EB was led by Anna at Great Ormond Street Hospital in collaboration with clinicians at Birmingham's Children's Hospital. The trial was funded...
Prof Dimitra Kiritsi, Aristotle University of Thessaloniki, is joining our Family Forum online to talk about the recently published results of the REFLECT study. In this phase 1/2 clinical trial, losartan was well tolerated by children with RDEB, and the trial provided preliminary evidence of...
To launch our Big Give Christmas Challenge week we invite you to our fabulous Butterfly Speaker Lunch at the elegant French restaurant, Orrery, in the heart of Marylebone on 3rd December. We are thrilled to have Mishal Husain, BBC Radio 4 Today programme presenter and...
Thank you to Chiesi for the provision of an arm’s length educational grant to support this webinar series. Gene editing Dr Joanna Jackow, King's College London, will be joining us for our November webinar to talk about her gene editing research and it's potential for...
Tickets are no longer available to pre-book. Please email [email protected] to enquire about additional spaces.If you or a family member have EB, then join us for our Family Day Sunday 29th September at the Queen Elizabeth Olympic Park in London! Cure EB Family Day is...
It’s time to fly! Cure EB’s Butterfly Run is a celebration of inclusivity taking place at the Queen Elizabeth Olympic Park in London on Sunday 29th September 2024 (previously advertised as Sunday 22nd). We are encouraging as many people of all abilities to run, walk,...
Prof Katsuto Tamai joins us for our second webinar of 2024, to talk about his work - a novel approach to severe dystrophic epidermolysis bullosa.
How do you dress your hands to try to minimise scarring, contraction and damage? If you have EB, or care for someone who does, join us for our Hand Hackathon where we can all share our knowledge of how we manage hands. Please note that...
Join Sharmila Collins and Dr Ciro Chiappini as they discuss the potential for nanoneedles to deliver treatments in EB.
Our biannual fundraising event, the Silver Butterfly Dinner, is on Thursday 16th May 2024. Save the date for a night of champagne, dinner, entertainment, and auctions! Email us for more information about tickets and tables.
Registration is now closed for this year's TCS London Marathon. However, three amazing runners are taking on the 26 mile challenge for us on 21 April 2024, find out how to support them below! Rosie Megaw Joe Joseph Daniela Jancikova If you would be interested...
