Faces of EB
About This Project

My son was not diagnosed with EB at birth.

We noticed his first blisters at 4 months old. I had been to a few different GPs and was told he had hand, foot and mouth,  and school sores (impetigo). I knew it was something more, so my mum paid for Jackson to see a dermatologist who straight away said he had EB and explained it all to us.

I was so heartbroken hearing those words “lifelong” and “no cure”, but my son is the toughest kid around, even on his lowest days when he’s wheelchair-bound and in so much pain he never lets it stop him from being happy.

EB will always be around and to find a cure would be so amazing so Jackson and others like him can live a full and happy life.


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