Research the Cure Webinar – September 2024
Prof Katsuto Tamai joins us for our second webinar of 2024, to talk about his work - a novel approach to severe dystrophic epidermolysis bullosa.
12 events found.
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Family Forum – Hand Hackathon
OnlineHow do you dress your hands to try to minimise scarring, contraction and damage? If you have EB, or care for someone who does, join us for our Hand Hackathon where we can all share our knowledge of how we manage hands. Please note that...
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Research the Cure Webinar – June 2024
OnlineJoin Sharmila Collins and Dr Ciro Chiappini as they discuss the potential for nanoneedles to deliver treatments in EB.
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Silver Butterfly Dinner
Our biannual fundraising event, the Silver Butterfly Dinner, is on Thursday 16th May 2024. Save the date for a night of champagne, dinner, entertainment, and auctions! Email us for more information about tickets and tables.
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London Marathon 2024
Registration is now closed for this year's TCS London Marathon. However, three amazing runners are taking on the 26 mile challenge for us on 21 April 2024, find out how to support them below! Rosie Megaw Joe Joseph Daniela Jancikova If you would be interested...
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Family Forum – All I Want for Christmas is a Cure
OnlineJoin us for our last Family Forum event of the year to find out more about what we are working on at Cure EB and let's have an informal chat about EB research generally. Hosted by Cure EB founder, Sharmila, and Community Liaison Officer, Kate....
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Butterfly Brunch with Hadley Freeman & Amelia Gentleman
Our Butterfly Brunch is returning for the first time since the pandemic, and we would love for you to join us in London for another stunning speaker event. At Orrery Restaurant, in the heart of London's Marylebone 55 Marylebone High Street, W1U 5RB 11.45am to...
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Research the Cure webinar
OnlineProf. Andrew South, Thomas Jefferson University, is joining us to talk about EB-associated squamous cell carcinoma (SCC) in our final Research the Cure webinar of the year.
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Cure EB Family Day 2023
Queen Elizabeth Olympic Park, LondonIf you or a family member have EB, then join us for our Family Day Sunday 24th September at the Queen Elizabeth Olympic Park in London! Cure EB Family Day is for EB families to connect, have fun, and catch up on the latest EB...
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Butterfly Run 2023
Queen Elizabeth Olympic Park, LondonIt's Time to fly! Cure EB’s Butterfly Run is a celebration of inclusivity taking place at the Olympic Park in London on Sunday 24th September 2023. We are encouraging as many people of all abilities to run, walk, wheel, or whatever you can do to...
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Focus on B-VEC – Family Forum, 13th July
For our first online Family Forum get together, we are delighted to have Suma Krishnan, Founder and President, Research & Development at Krystal Biotech and Peter Marinkovich, Associate Professor of Dermatology at Stanford University and primary investigator of the GEM-3 study, joining us to talk...
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Research the Cure Webinar
OnlineBe Prepared! In our second webinar of 2023, we will be joined by Prof John McGrath and Prof Jakub Tolar to discuss what you, as a patient or carer, need in your EB toolkit in preparation for clinical trials. There will be an opportunity to...